Validation of the Subjective Handicap of Epilepsy (SHE) in Brazilian patients with epilepsy

详细信息	查看全文 | 推荐本文 |

• 作者：Edna de Almeida Monteiro^a ; Flá ; via de Lima Osó ; rio^a ; ^b ; ^{flaliosorio@ig.com.br} ; Alexandre Veriano Junior^a ; Roberto Souza Molina^a ; Sandra Souza Funayama^a ; Vera Cristina Terra^a ; Tonicarlo R. Velasco^a ; Ricardo Guarnieri^a ; Marino Bianchin^a ; Joã ; o Alberto Assirati Jr.^a ; Americo Ceiki Sakamoto^a ; Jaime Eduardo Cecí ; lio Hallak^a ; ^b
• 关键词：Epilepsy ; Quality of life ; Instrument ; Validation ; Transcultural ; Subjective handicap of epilepsy
• 刊名：Epilepsy & Behavior
• 出版年：2012
• 期刊代码：76_15255050
• 类别：neu
• 出版时间：July, 2012
• 卷：24
• 期：3
• 页码：345-351
• 文件大小：623 K

摘要

The objectives of the study were to translate and adapt the Subjective Handicap of Epilepsy (SHE) instrument to Brazilian Portuguese and to determine its psychometric properties for the evaluation of quality of life in patients with epilepsy. A sample of 448 adult patients with epilepsy with different clinical profiles (investigation, preoperative period, postoperative period, and drug treatment follow-up) was evaluated with the SHE and the Epilepsy Surgery Inventory (ESI-55). Exploratory factorial analysis demonstrated that four factors explained 60.47%of the variance and were sensitive to discriminate the different clinical groups, with the preoperative group having the poorest quality of life. Internal consistency ranged from 0.92 to 0.96, and concurrent validity with the ESI-55 was moderate/strong (0.32-0.70). Test-retest reliability was confirmed, with an ICC value of 0.54 (2 days), 0.91 (7 days), and 0.97 (30 days). The SHE had satisfactory psychometric qualities for use in the Brazilian population, similar to those of the original version. The instrument seems to be more adequate in psychometric terms for the postoperative and drug treatment follow-up groups, and its use should be encouraged.