国内外残疾相关数据的内容与标准研究进展
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摘要
研究分析世界卫生组织残疾评估工具和量表及国际重要残疾相关残疾统计文件,并分析美国和中国残疾相关数据内容与标准现状,发现国际相关的残疾调查数据采用了《国际功能、残疾和健康分类》(ICF)的术语和标准,美国的残疾调查符合ICF理念,我国残疾相关调查部分采用ICF标准。
This paper reviewed international documents of disability statistics. The results showed that all disability measurements had been adopted International Classification of Functioning, Disability and Health(ICF) terminology and approach.Disability statistics in US tailored to ICF framework and classification. Disability statistics in China had partially adopted ICF approach.
This paper reviewed international documents of disability statistics. The results showed that all disability measurements had been adopted International Classification of Functioning, Disability and Health(ICF) terminology and approach.Disability statistics in US tailored to ICF framework and classification. Disability statistics in China had partially adopted ICF approach.
引文
[1]世界卫生组织.残疾,包括预防、管理和康复[J].中国康复理论与实践,2005,11(7):505.
[2]邱卓英,荀芳,张爱民,等.世界卫生组织残疾与康复行动计划(2006年~2011年)[J].中国康复理论与实践,2007,13(2):109-110.
[3]邱卓英.国际残疾调查与统计的主要方法研究[J].中国康复理论与实践,2004,10(6):321-325.
[4]邱卓英.国际社会有关残疾普查与统计政策研究[J].中国康复理论与实践,2004,10(2):113-116.
[5]邱卓英,刘智渊,刘凤娥,等.国际残疾统计比较研究[J].中国康复理论与实践,2005,11(11):958-960.
[6]李锁强,肖丽,徐建琳,等.中国的残疾统计[J].中国统计,2016(5):6-9.
[7]李锁强,肖丽,徐建琳,等.中国残疾统计面临的挑战与建议(上)[J].中国统计,2016(7):4-7.
[8]李锁强,肖丽,徐建琳,等.中国残疾统计面临的挑战与建议(下)[J].中国统计,2016(8):7-10.
[9]联合国.联合国帮助亚太各国建立残疾人数据库[EB/OL].[2017-04-13].https://news.un.org/zh/story/2004/05/15942.
[10]The WHOQOL Group.Development of the World Health Organization WHOQOL-BREF quality of life assessment[J].Psychol Med,1998,28(3):551-558.
[11]Baumann C,Erpelding ML,Regat S,et al.The WHO-QOL-BREF questionnaire:French adult population norms for the physical health,psychological health and social relationship dimensions[J].Rev Epidemiol Sante Publique,2010,58(1):33-39.
[12]Chachamovich E,Trentini C,Fleck MP.Assessment of the psychometric performance of the WHOQOL-BREF instrument in a sample of Brazilian older adults[J].Int Psychogeriatrics,2007,19(4):635-646.
[13]何作顺,张迪,李鸿,等.民族地区残疾老年人生存质量调查研究[J].现代预防医学,2014,41(3):494-496,499.
[14]世界卫生组织.国际功能、残疾和健康分类[M].日内瓦:世界卫生组织,2001.
[15]World Health Organization.The World Health Report 2000:Health Systems:Improving Performance[R].Geneva:World Health Organization,2000.
[16]World Health Organization,World Bank.World Report on Disability[M].Geneva:World Health Organization,2011.
[17]World Health Organization.Model Disability Survey:Providing evidence for accountability and decision-making[EB/OL].[2018-08-15].http://www.who.int/disabilities/data mds_v4.pdf?ua=1.
[18]World Health Organization.ICF Checklist Version 2.1a,Clinician Form for International Classification of Functioning,Disability and Health[EB/OL].[2017-04-25].http://www.who.int classifications/icf/training/icfchecklist.pdf.
[19]Bickenbach J,Cieza A,Rauch A,et al.ICF核心分类组合临床实践手册[M].邱卓英,励建安,吴弦光,译.北京:人民军医出版社,2013.
[20]üstün TB,Kostanjsek N,Chatterji S,et al.Measuring health and disability:manual for WHO Disability Assessment Schedule(WHODAS 2.0)[M].Geneva:World Health Organization2010.
[21]Federici S,Bracalenti M,Meloni F,et al.World Health Organization Disability Assessment Schedule 2.0:An internationa systematic review[J].Disabil Rehabil,2017,39(23)2347-2380.
[22]Power MJ,Green AM,Group WD.The Attitudes to Disability Scale(ADS):development and psychometric properties[J].JIntellect Disabil Res,2010,54(9):860-874.
[23]田琪,郝元涛,陶健婷,等.世界卫生组织残疾态度量表中文版的信度效度分析[J].中国组织工程研究,2010,14(46)8681-8685.
[24]Lyon L,Houser R.Psychometric evaluation of the Attitudes to Disability Scale for Use with Nurse Educators[J].J Nurs Meas,2016,24(3):465-476.
[25]Lucas-Carrasco R,Eser E,Hao Y,et al.The Quality of Care and Support(QOCS)for people with disability scale:Development and psychometric properties[J].Res Dev Disabil,201132(3):1212-1225.
[26]郑巧兰,田琪,梁左宜,等.世界卫生组织残疾人照顾质量量表中文版的信度和效度[J].中国康复医学杂志,2013,28(4)334-338.
[27]李鸿.大理地区残疾老人照顾质量调查[D].大理:大理学院,2014.
[28]Bredemeier J,Agranonik M,Perez TS,et al.Brazilian version of the Quality of Care Scale:the perspective of people with disabilities[J].Rev Saude Publica,2014,48(4):583-593.
[29]联合国亚洲及太平洋经济及社会委员会.第六十九届会议--2013-2012年亚洲及太平洋残疾人十年执行情况最后审查高级别政府间会议报告附件一:促进亚洲及太平洋残疾人“切实享有权利”仁川战略[EB/OL].[2017-03-02].http://www unescap.org/sites/default/files/E69_12C.pdf.
[30]邱卓英,陈迪.发展卫生保健和康复服务,增进残疾人健康--学习《世卫组织2014~2021年全球残疾问题行动计划:增进所有残疾人的健康》[J].中国康复理论与实践,2014,20(7):611-615.
[31]World Health Organization.Rehabilitation 2030:A Call for Action[EB/OL].[2018-08-12].http://www.who.int/disabilities/care/rehab-2030/en/.
[32]Defining Disability:a comparison of disability prevalence estimates produced by BRFSS and other data sources[EB/OL].[2017-03-23].http://50.57.217.98/pdf/mtfactors/2012_factors1_final.pdf.
[33]US Census Bureau.Disability Status:2000[EB/OL].[2017-05-03].https://www.census.gov/prod/2003pubs/c2kbr-17.pdf.
[34]夏宗明,薛成兵.美国全国卫生访问调查简介[J].中国卫生事业管理,1993(8):454-457.
[35]US Census Bureau.American Community Survey(ACS)[EB/OL].[2017-03-23].https://www.census.gov/people/disability/methodology/acs.html.
[36]Brault MW.Americans with disabilities:2005 Current population reports[EB/OL].[2017-3-25].https://www.openminds.com/wp-content/uploads/indres/120108disabilitycensus.pdf.
[37]2010disabilitysurveys.2010 GAP Survey of Americans with Disabilities[EB/OL].[2017-03-23].http://www.2010disabilitysurveys.org/.
[38]Madans JH,Loeb ME,Altman BM.Measuring disability and monitoring the UN Convention on the Rights of Persons with Disabilities:the work of the Washington Group on Disability Statistics[J].BMC Public Health,2011,11(4):1-8.
[39]戴圣婷,杨剑,邱卓英,等.中国ICF的研究与发展--基于CiteSpaceⅢ文献分析[J].中国康复理论与实践,2017,23(10):1137-1144.
[40]彭晓霞,王嵬.残疾概念框架演变对残疾调查的影响[C].残疾人社会保障与服务国际论坛论文集,2010.
[41]Stucki G,Kostanjsek N,üstün B,et al.基于ICF的功能分类和测量[J].张静,邱卓英,吴弦光,译.中国康复理论与实践,2011,17(1):17-25.
[42]程昭雯,石旸,甘雪芹,等.国际残疾统计发展及对中国的启示[J].中国统计,2016(4):10-12.
[43]邱卓英,郭键勋,杨剑,等.康复2030:促进实现《联合国2030年可持续发展议程》相关目标[J].中国康复理论与实践,2017,23(4):373-378.
[44]廖娟.残疾人就业政策效果评估--来自CHIP数据的经验证据[J].人口与经济,2015(2):68-77.
[45]Centers for Disease Control and Prevention.Revising the United Nations Census Recommendations on Disability[EB/OL].[2017-03-26].http://www.cdc.gov/nchs/data/washington_group/meeting1/me_mbogoni1.pdf.
[46]雷后兴.将残疾人人口信息纳入全国人口普查项目内容[N].人民政协报,2015-01-05:4.
[47]裴丽君.建立以人群为基础的残疾监测系统,为残疾人事业发展提供基础平台[J].人口与发展,2013,19(2):84-89.
[2]邱卓英,荀芳,张爱民,等.世界卫生组织残疾与康复行动计划(2006年~2011年)[J].中国康复理论与实践,2007,13(2):109-110.
[3]邱卓英.国际残疾调查与统计的主要方法研究[J].中国康复理论与实践,2004,10(6):321-325.
[4]邱卓英.国际社会有关残疾普查与统计政策研究[J].中国康复理论与实践,2004,10(2):113-116.
[5]邱卓英,刘智渊,刘凤娥,等.国际残疾统计比较研究[J].中国康复理论与实践,2005,11(11):958-960.
[6]李锁强,肖丽,徐建琳,等.中国的残疾统计[J].中国统计,2016(5):6-9.
[7]李锁强,肖丽,徐建琳,等.中国残疾统计面临的挑战与建议(上)[J].中国统计,2016(7):4-7.
[8]李锁强,肖丽,徐建琳,等.中国残疾统计面临的挑战与建议(下)[J].中国统计,2016(8):7-10.
[9]联合国.联合国帮助亚太各国建立残疾人数据库[EB/OL].[2017-04-13].https://news.un.org/zh/story/2004/05/15942.
[10]The WHOQOL Group.Development of the World Health Organization WHOQOL-BREF quality of life assessment[J].Psychol Med,1998,28(3):551-558.
[11]Baumann C,Erpelding ML,Regat S,et al.The WHO-QOL-BREF questionnaire:French adult population norms for the physical health,psychological health and social relationship dimensions[J].Rev Epidemiol Sante Publique,2010,58(1):33-39.
[12]Chachamovich E,Trentini C,Fleck MP.Assessment of the psychometric performance of the WHOQOL-BREF instrument in a sample of Brazilian older adults[J].Int Psychogeriatrics,2007,19(4):635-646.
[13]何作顺,张迪,李鸿,等.民族地区残疾老年人生存质量调查研究[J].现代预防医学,2014,41(3):494-496,499.
[14]世界卫生组织.国际功能、残疾和健康分类[M].日内瓦:世界卫生组织,2001.
[15]World Health Organization.The World Health Report 2000:Health Systems:Improving Performance[R].Geneva:World Health Organization,2000.
[16]World Health Organization,World Bank.World Report on Disability[M].Geneva:World Health Organization,2011.
[17]World Health Organization.Model Disability Survey:Providing evidence for accountability and decision-making[EB/OL].[2018-08-15].http://www.who.int/disabilities/data mds_v4.pdf?ua=1.
[18]World Health Organization.ICF Checklist Version 2.1a,Clinician Form for International Classification of Functioning,Disability and Health[EB/OL].[2017-04-25].http://www.who.int classifications/icf/training/icfchecklist.pdf.
[19]Bickenbach J,Cieza A,Rauch A,et al.ICF核心分类组合临床实践手册[M].邱卓英,励建安,吴弦光,译.北京:人民军医出版社,2013.
[20]üstün TB,Kostanjsek N,Chatterji S,et al.Measuring health and disability:manual for WHO Disability Assessment Schedule(WHODAS 2.0)[M].Geneva:World Health Organization2010.
[21]Federici S,Bracalenti M,Meloni F,et al.World Health Organization Disability Assessment Schedule 2.0:An internationa systematic review[J].Disabil Rehabil,2017,39(23)2347-2380.
[22]Power MJ,Green AM,Group WD.The Attitudes to Disability Scale(ADS):development and psychometric properties[J].JIntellect Disabil Res,2010,54(9):860-874.
[23]田琪,郝元涛,陶健婷,等.世界卫生组织残疾态度量表中文版的信度效度分析[J].中国组织工程研究,2010,14(46)8681-8685.
[24]Lyon L,Houser R.Psychometric evaluation of the Attitudes to Disability Scale for Use with Nurse Educators[J].J Nurs Meas,2016,24(3):465-476.
[25]Lucas-Carrasco R,Eser E,Hao Y,et al.The Quality of Care and Support(QOCS)for people with disability scale:Development and psychometric properties[J].Res Dev Disabil,201132(3):1212-1225.
[26]郑巧兰,田琪,梁左宜,等.世界卫生组织残疾人照顾质量量表中文版的信度和效度[J].中国康复医学杂志,2013,28(4)334-338.
[27]李鸿.大理地区残疾老人照顾质量调查[D].大理:大理学院,2014.
[28]Bredemeier J,Agranonik M,Perez TS,et al.Brazilian version of the Quality of Care Scale:the perspective of people with disabilities[J].Rev Saude Publica,2014,48(4):583-593.
[29]联合国亚洲及太平洋经济及社会委员会.第六十九届会议--2013-2012年亚洲及太平洋残疾人十年执行情况最后审查高级别政府间会议报告附件一:促进亚洲及太平洋残疾人“切实享有权利”仁川战略[EB/OL].[2017-03-02].http://www unescap.org/sites/default/files/E69_12C.pdf.
[30]邱卓英,陈迪.发展卫生保健和康复服务,增进残疾人健康--学习《世卫组织2014~2021年全球残疾问题行动计划:增进所有残疾人的健康》[J].中国康复理论与实践,2014,20(7):611-615.
[31]World Health Organization.Rehabilitation 2030:A Call for Action[EB/OL].[2018-08-12].http://www.who.int/disabilities/care/rehab-2030/en/.
[32]Defining Disability:a comparison of disability prevalence estimates produced by BRFSS and other data sources[EB/OL].[2017-03-23].http://50.57.217.98/pdf/mtfactors/2012_factors1_final.pdf.
[33]US Census Bureau.Disability Status:2000[EB/OL].[2017-05-03].https://www.census.gov/prod/2003pubs/c2kbr-17.pdf.
[34]夏宗明,薛成兵.美国全国卫生访问调查简介[J].中国卫生事业管理,1993(8):454-457.
[35]US Census Bureau.American Community Survey(ACS)[EB/OL].[2017-03-23].https://www.census.gov/people/disability/methodology/acs.html.
[36]Brault MW.Americans with disabilities:2005 Current population reports[EB/OL].[2017-3-25].https://www.openminds.com/wp-content/uploads/indres/120108disabilitycensus.pdf.
[37]2010disabilitysurveys.2010 GAP Survey of Americans with Disabilities[EB/OL].[2017-03-23].http://www.2010disabilitysurveys.org/.
[38]Madans JH,Loeb ME,Altman BM.Measuring disability and monitoring the UN Convention on the Rights of Persons with Disabilities:the work of the Washington Group on Disability Statistics[J].BMC Public Health,2011,11(4):1-8.
[39]戴圣婷,杨剑,邱卓英,等.中国ICF的研究与发展--基于CiteSpaceⅢ文献分析[J].中国康复理论与实践,2017,23(10):1137-1144.
[40]彭晓霞,王嵬.残疾概念框架演变对残疾调查的影响[C].残疾人社会保障与服务国际论坛论文集,2010.
[41]Stucki G,Kostanjsek N,üstün B,et al.基于ICF的功能分类和测量[J].张静,邱卓英,吴弦光,译.中国康复理论与实践,2011,17(1):17-25.
[42]程昭雯,石旸,甘雪芹,等.国际残疾统计发展及对中国的启示[J].中国统计,2016(4):10-12.
[43]邱卓英,郭键勋,杨剑,等.康复2030:促进实现《联合国2030年可持续发展议程》相关目标[J].中国康复理论与实践,2017,23(4):373-378.
[44]廖娟.残疾人就业政策效果评估--来自CHIP数据的经验证据[J].人口与经济,2015(2):68-77.
[45]Centers for Disease Control and Prevention.Revising the United Nations Census Recommendations on Disability[EB/OL].[2017-03-26].http://www.cdc.gov/nchs/data/washington_group/meeting1/me_mbogoni1.pdf.
[46]雷后兴.将残疾人人口信息纳入全国人口普查项目内容[N].人民政协报,2015-01-05:4.
[47]裴丽君.建立以人群为基础的残疾监测系统,为残疾人事业发展提供基础平台[J].人口与发展,2013,19(2):84-89.