淋巴瘤患者自我形象改变体验的质性研究
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摘要
目的探索淋巴瘤患者自我形象改变体验,为医护人员提供基于患者需求的优质心理护理给予理论依据。方法采用描述性质性研究对16例淋巴瘤患者行面对面半结构式访谈,并用传统内容分析法予以资料分析。结果通过对资料的整理及分析,得出淋巴瘤患者自我形象改变体验为我是不吉利的象征、我是个"丑八怪"、我是个"瓷娃娃"、我是个没用的人和我是个因病得福的人5个主题。结论淋巴瘤患者有负性自我形象及积极自我形象,可能与耻感、患者创伤后成长及心理弹性有关。
Objective To study the experience of self-image change for lymphoma patients to provide reference for high-quality psychological nursing based on patients' demands from nursing staff. Method 16 lymphoma patients receive face-to-face semi-structural interviews by descriptive qualitative method. Analyze the information by traditional content analysis method. Result 5 themes of I'm a symbol of unlucky, I'm very ugly person, I'm a ‘porcelain doll', I'm useless and I am blessed because of illness for experience of self-image change of lymphoma patients are concluded through arrangement and analysis on the information. Conclusion Lymphoma patients have negative and positive self-image, which is probably associated to stigma, posttraumatic growth and psychological resilience.
Objective To study the experience of self-image change for lymphoma patients to provide reference for high-quality psychological nursing based on patients' demands from nursing staff. Method 16 lymphoma patients receive face-to-face semi-structural interviews by descriptive qualitative method. Analyze the information by traditional content analysis method. Result 5 themes of I'm a symbol of unlucky, I'm very ugly person, I'm a ‘porcelain doll', I'm useless and I am blessed because of illness for experience of self-image change of lymphoma patients are concluded through arrangement and analysis on the information. Conclusion Lymphoma patients have negative and positive self-image, which is probably associated to stigma, posttraumatic growth and psychological resilience.
引文
[1] COHEN M Z,KAHN D L,STEEVES R H.Beyond body image: the experience of breast cancer[J].Oncol Nurs For,1998,25(5):835-841.
[2] FINGERET M C,TEO I,EPNER D E.Managing body image difficulties of adult cancer patients: lessons from available research[J].Cancer,2014,120(5):633-641.
[3] CHEN W Q,ZHENG R S,ZENG H M,et al.The updated incidences and mortalities of major cancers in China,2011[J].Chin J Cancer,2015,34(3):53.
[4] BOLUKBAS F,KUTLUTURKAN S.Symptoms and symptom clusters in non Hodgkin’s lymphoma patients in Turkey[J].Asian Pac J Cancer Prev,2014,15(17):7153-7158.
[5] BEYNON T,SELMAN L,RADCLIFFE E,et al.‘We had to change to single beds because I itch in the night’:a qualitative study of the experiences,attitudes and approaches to coping of patients with cutaneous T-cell lymphoma[J].Br J Dermatol,2015,173(1):83-92.
[6] SWASH B,HULBERT-WILLIAMS N,BRAMWELL R.‘Haematological cancers, they’re a funny bunch’:a qualitative study of non-Hodgkin’s lymphoma patient experiences of unmet supportive care needs[J].J Health Psychol,2018,23(11):1464-1475. DOI:10.1177/1359105316660179.
[7] MATHESON L,BOULTON M,LAVENDER V,et al.The experiences of young adults with Hodgkin lymphoma transitioning to survivorship a grounded theory study[J].Oncol Nurs Forum,2016,43(5):E195-E204.
[8] O’REILLY M,PARKER N.‘Unsatisfactory saturation’:a critical exploration of the notion of saturated sample sizes in qualitative research[J].Qual Res,2012,13(2):190-197.
[9] 袁媛,李金娇,肖荦,等.Ann Arbor分期划分淋巴瘤淋巴结区域的意义探讨[J].中国现代医学杂志,2017,27(10):107-111.
[10] SANDELOWSKI M.Focus on research methods whatever happened to qualitative description?[J].Res Nurs Health,2000,23:334-340.
[11] HSIEH H F,SHANNON S E.Three approaches to qualitative content analysis[J].Qual Health Res,2005,15:1277-1288.
[12] MARLOW L A,WARDLE J.Development of a scale to assess cancer stigma in the non-patient population[J].BMC Cancer,2014,14:285.
[13] HSU C Y,O’CONNOR M,Lee S.Understandings of death and dying for people of Chinese origin[J].Death Stud,2009,33 (2):153-174.
[14] BROWER V.Scalp cooling and hair loss during breast cancer chemotherapy[J].Lancet Oncol,2017,18(4):e199.DOI: 10.1016/S1470-2045(17)30158-4.
[15] 涂阳军,郭永玉.创伤后成长:概念、影响因素、与心理健康的关系[J].心理科学进展,2010,18(1):114-122.
[16] AMERICAN PSYCHOLOGY ASSOCIATION.The road to resilience: what is resilience[EB/OL]. (2018-02-23). http://www.apa.org/helpcenter/road-resilience.aspx.
[17] MENG Z Y,WU X M,HAN L.Post-traumatic stress disorder and post-traumatic growth among the adult survivors of the Lushan earthquake: selecting resilience as the moderator[J].Int J Disaster Risk Reduct,2018,27:524-529.
[2] FINGERET M C,TEO I,EPNER D E.Managing body image difficulties of adult cancer patients: lessons from available research[J].Cancer,2014,120(5):633-641.
[3] CHEN W Q,ZHENG R S,ZENG H M,et al.The updated incidences and mortalities of major cancers in China,2011[J].Chin J Cancer,2015,34(3):53.
[4] BOLUKBAS F,KUTLUTURKAN S.Symptoms and symptom clusters in non Hodgkin’s lymphoma patients in Turkey[J].Asian Pac J Cancer Prev,2014,15(17):7153-7158.
[5] BEYNON T,SELMAN L,RADCLIFFE E,et al.‘We had to change to single beds because I itch in the night’:a qualitative study of the experiences,attitudes and approaches to coping of patients with cutaneous T-cell lymphoma[J].Br J Dermatol,2015,173(1):83-92.
[6] SWASH B,HULBERT-WILLIAMS N,BRAMWELL R.‘Haematological cancers, they’re a funny bunch’:a qualitative study of non-Hodgkin’s lymphoma patient experiences of unmet supportive care needs[J].J Health Psychol,2018,23(11):1464-1475. DOI:10.1177/1359105316660179.
[7] MATHESON L,BOULTON M,LAVENDER V,et al.The experiences of young adults with Hodgkin lymphoma transitioning to survivorship a grounded theory study[J].Oncol Nurs Forum,2016,43(5):E195-E204.
[8] O’REILLY M,PARKER N.‘Unsatisfactory saturation’:a critical exploration of the notion of saturated sample sizes in qualitative research[J].Qual Res,2012,13(2):190-197.
[9] 袁媛,李金娇,肖荦,等.Ann Arbor分期划分淋巴瘤淋巴结区域的意义探讨[J].中国现代医学杂志,2017,27(10):107-111.
[10] SANDELOWSKI M.Focus on research methods whatever happened to qualitative description?[J].Res Nurs Health,2000,23:334-340.
[11] HSIEH H F,SHANNON S E.Three approaches to qualitative content analysis[J].Qual Health Res,2005,15:1277-1288.
[12] MARLOW L A,WARDLE J.Development of a scale to assess cancer stigma in the non-patient population[J].BMC Cancer,2014,14:285.
[13] HSU C Y,O’CONNOR M,Lee S.Understandings of death and dying for people of Chinese origin[J].Death Stud,2009,33 (2):153-174.
[14] BROWER V.Scalp cooling and hair loss during breast cancer chemotherapy[J].Lancet Oncol,2017,18(4):e199.DOI: 10.1016/S1470-2045(17)30158-4.
[15] 涂阳军,郭永玉.创伤后成长:概念、影响因素、与心理健康的关系[J].心理科学进展,2010,18(1):114-122.
[16] AMERICAN PSYCHOLOGY ASSOCIATION.The road to resilience: what is resilience[EB/OL]. (2018-02-23). http://www.apa.org/helpcenter/road-resilience.aspx.
[17] MENG Z Y,WU X M,HAN L.Post-traumatic stress disorder and post-traumatic growth among the adult survivors of the Lushan earthquake: selecting resilience as the moderator[J].Int J Disaster Risk Reduct,2018,27:524-529.