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脡tude de la qualit茅 de vie et des processus d鈥檃justement des parents d鈥檜n enfant ayant un trouble autistique ou un syndrome d鈥橝sperger聽: effet de plusieurs variables socio-biographiques parentales et caract茅ristiques li茅es 脿 l鈥檈nfant
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摘要

Parents of an autistic child go through many periods of transition, which may be perceived as stressful. Bruchon-Schweitzer and Dantzer (1994) developed a model to study the coping behaviours, which takes into account both the stressors and transactional variables. Until now, many researches have focused on stress endured by parents and strategies used by them to cope with the disorder of their child. However, those considering the impact of autism on quality of life are not frequent. We met 160聽parents who filled out several questionnaires and self-rating scales we have adapted or created for assessing: (1) information about the child and the family situation; (2) perceived stress; (3) perceived social support; (4) perceived control; (5) coping strategies and (6) quality of life. Our results provide some interesting elements for clinicians and support the already existing data: Autism puts a strain on the life of parents who, as a consequence, would need more substantial breaks in their daily life. The results also support our hypotheses: The child's autonomy, his or her school and social insertion, as well as the partnership between parents and professionals are at the root of a successful adaptation. Finally, they indicate the relevance of a program for parents focused on the management of stress and emotions, adjustment of cognitions and resolution of problems.

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