急性白血病患儿父母对PICC维护人文关怀体验与需求的质性研究
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摘要
目的了解急性白血病患儿父母对PICC维护的人文关怀体验与需求,为制订针对性的护理措施提供参考。方法采用质性研究中的现象学研究法,对15名急性白血病患儿父母进行半结构访谈,并运用Colaizzi 7步分析法进行资料分析。结果提炼出4个人文关怀体验主题:主动服务,为他人着想;技术娴熟、动作轻柔;尊重、体谅家属;善于与患儿沟通。4个人文关怀需求主题:PICC日常照顾知识需求;满足患儿尊重的需求;多形式开展人文关怀的需求;普及PICC维护点的需求。结论急性白血病患儿父母对PICC维护的人文关怀持肯定态度,但仍存在各种特殊需求,亟需不断完善PICC维护工作,多途径满足急性白血病患儿父母关于PICC维护的人文关怀需求。
Objective To explore experience and needs for humanistic care among parents of acute leukemia children receiving maintenance care of a PICC, and to provide references for targeted nursing intervention.Methods A total of 15 parents of acute leukemia children receiving maintenance care of a PICC were invited to join in semi-structured interviews.Then the data were analyzed with Colaizzi′s 7-step analytical method.Results Four themes of humanistic care experience were extracted from the interviews: nurses offer active service and always think of others; nurses provide skillful service with gentleness; nurses respect and show understan-ding and sympathy for the family members of patients; nurses are good at communication. Four themes of humanistic care needs were extracted as follows: the needs of knowledge of PICC daily care; the needs to maintain patient dignity; the needs to receive humanistic care in different forms; the needs to have more PICC maintenance sites.Conclusion Parents of acute leukemia children had positive attitudes towards humanistic care during PICC maintenance.Yet they had a variety of special needs. Measures should be taken to improve PICC maintenance service, and satisfy the parents′ need of humanistic care through various ways.
Objective To explore experience and needs for humanistic care among parents of acute leukemia children receiving maintenance care of a PICC, and to provide references for targeted nursing intervention.Methods A total of 15 parents of acute leukemia children receiving maintenance care of a PICC were invited to join in semi-structured interviews.Then the data were analyzed with Colaizzi′s 7-step analytical method.Results Four themes of humanistic care experience were extracted from the interviews: nurses offer active service and always think of others; nurses provide skillful service with gentleness; nurses respect and show understan-ding and sympathy for the family members of patients; nurses are good at communication. Four themes of humanistic care needs were extracted as follows: the needs of knowledge of PICC daily care; the needs to maintain patient dignity; the needs to receive humanistic care in different forms; the needs to have more PICC maintenance sites.Conclusion Parents of acute leukemia children had positive attitudes towards humanistic care during PICC maintenance.Yet they had a variety of special needs. Measures should be taken to improve PICC maintenance service, and satisfy the parents′ need of humanistic care through various ways.
引文
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[10] 杨丽莎,陈素梅,廖小玲,等.健康教育在提高肿瘤病人留置PICC管依从性的应用[J].护理实践与研究,2009,6(14):115-116.
[11] 张慧敏,陈毓雯,甄佳静,等.血液病患儿PICC导管断裂的应急处理与预防[J].护理学杂志,2015,30(13):61-84.
[12] 赵林芳.国内外输液小组与PICC管理研究进展[J].中国护理管理,2009,9(2):5-9.
[13] 徐琛,郭秋菊,刘雨涵.实体瘤患儿PICC管路在门诊维护与使用的现状分析[J].中国小儿血液与肿瘤杂志,2016.21(5):266-268.
[14] 许栋,王国栋,张明,等.公立医院与基层医疗卫生机构分工协作的现状及策略[J].中国医院管理,2013,33(4):10-13.
[15] 中华人民共和国国家卫生和健康委员会.进一步改善医疗服务行动计划(2018-2020年)[S/OL].(2017-12-29)[2018-01-04].http://www.nhfpc.gov.cn/yzygj/s3594q/201801/9df87fced4da47b0a9f8e1ce9fbc7520.shtml.
[2] Menendez J J,Verdu C,Calderon B,et al.Incidence and risk factors of superficial and deep vein thrombosis associated with peripherally inserted central catheters in children[J].JTH,2016,14(11):2158-2168.
[3] 马慧珍,李倩,何慧娟,等.PICC置管患者医护协同全程管理效果探讨[J].护理学杂志,2017,32(5):45-47.
[4] 何娇,吴丽芬,刘恋.儿科血液病区护士人文关怀能力的培养[J].护理学杂志,2014,29(17):50-52.
[5] Colaizzi P.Psychological research as the phenomenologists views it[M].New York:Oxford University Press,1978:487.
[6] 李丹露,热娜·买买提,王学梅,等.恶性肿瘤儿童及家长心理调查及影响因素分析[J].新疆医学,2018,48(2):123-126.
[7] 刘义兰.优质护理服务工作中加强人文关怀的思考[J].护理学杂志,2012,27(9):1-2,26.
[8] 官春燕,刘义兰,许娟,门诊患者就医关怀体验质性研究[J].中华医院管理杂志2016,32(4):299-302.
[9] 薛朝华,刘义兰,鲁才红.眼科住院患者关怀护理体验的质性研究[J].护理学杂志,2017,32(12):79-82.
[10] 杨丽莎,陈素梅,廖小玲,等.健康教育在提高肿瘤病人留置PICC管依从性的应用[J].护理实践与研究,2009,6(14):115-116.
[11] 张慧敏,陈毓雯,甄佳静,等.血液病患儿PICC导管断裂的应急处理与预防[J].护理学杂志,2015,30(13):61-84.
[12] 赵林芳.国内外输液小组与PICC管理研究进展[J].中国护理管理,2009,9(2):5-9.
[13] 徐琛,郭秋菊,刘雨涵.实体瘤患儿PICC管路在门诊维护与使用的现状分析[J].中国小儿血液与肿瘤杂志,2016.21(5):266-268.
[14] 许栋,王国栋,张明,等.公立医院与基层医疗卫生机构分工协作的现状及策略[J].中国医院管理,2013,33(4):10-13.
[15] 中华人民共和国国家卫生和健康委员会.进一步改善医疗服务行动计划(2018-2020年)[S/OL].(2017-12-29)[2018-01-04].http://www.nhfpc.gov.cn/yzygj/s3594q/201801/9df87fced4da47b0a9f8e1ce9fbc7520.shtml.