癌症患者尊严影响因素及其干预措施的研究进展
|
摘要
文章介绍了癌症患者尊严的评估工具,从个体因素和社会因素两个角度指出癌症患者尊严的影响因素及其建议,并综述了癌症患者尊严疗法、生命回顾、尊严清单、以个体意义为中心的心理疗法等干预现状,以期为进一步的研究提供参考。
The paper introduces the assessment tools of cancer patients' dignity,and points out the influencing factors and recommendations from two aspects,including individual factors and social factors.Then it summarizes the application of interventions like cancer patients dignity therapy,life review,dignity list,personal meaning-centered psychotherapy,so as to provide reference for further research.
The paper introduces the assessment tools of cancer patients' dignity,and points out the influencing factors and recommendations from two aspects,including individual factors and social factors.Then it summarizes the application of interventions like cancer patients dignity therapy,life review,dignity list,personal meaning-centered psychotherapy,so as to provide reference for further research.
引文
[1]陈万青,郑荣寿,张思维,等.2013年中国恶性肿瘤发病和死亡分析[J].中国肿瘤,2017,26(1):1-7. DOI:10.11735/j.issn.1004-0242.2017.01.A001.
[2]JEMAL A,WARD E M,JOHNSON C J,et al.Annual reportto the nation on the status of cancer,1975-2014,FeaturingSurvival[J].Journal of the National Cancer Institute,2017,109(9):1-22.
[3]王云岭.现代医学情境下死亡的尊严研究[D].济南:山东大学,2011.
[4]宁晓东,张永炼,杨春,等.尊严疗法对住院晚期癌症患者生活满意度及心理状况的影响[J].中国护理管理,2018,18(3):306-311. DOI:10. 3969/j. issn. 1672-1756.2018.03.005.
[5]曹艳梅,薛云珍,葛国靖,等.晚期癌症患者尊严现状及影响因素研究[J].护理学报,2017,24(7):30-34.DOI:10.16460/j.issn1008-9969.2017.07.030.
[6]CHOCHINOV H M,HACK T,MCCLEMENT S,et al. Thepatient dignity inventory:a novel way of measuring dignityrelated distress in palliative care[J]. Journal of Pain andSymptom Management, 2008, 36(6):559-571. DOI:10.1016/j.jpainsymman.2007.12.018.
[7]葛国靖,曹艳梅.中文版患者尊严量表初步修订及信、效度评价[J].中国公共卫生,2015,12(3):1-4. DOI:10.11847/zgggws2016-32-08-21.
[8]VLUG M G,DEVET H C W,PASMAN H R W,et al.Thedevelopment of an instrument to measure factors that influ-ence self-perceived dignity[J].Journal of Palliative Medi-cine,2011,14(5):578-580.DOI:10.1089/jpm.2010.0513.
[9]MIYASHITA M,MORITA T,SATO K,et al.Good Death In-ventory:a measure for evaluating good death from the be-reaved family member's perspective[J].Journal of Pain andSymptom Management, 2008, 35(5):486-498. DOI:10.1016/j.jpainsymman.2007.07.009.
[10]HACK T,CHOCHINOV H M,HASSARD T,et al.Definingdignity in terminally ill cancer patients:a factor-analyticapproach[J]. Psychocncology,2004,13(10):700-708.DOI:10.1002/pon.786.
[11]冯佳菏,薛云珍,孙轶文,等.山西省两家肿瘤医院晚期癌症患者尊严现状及其情绪、生命质量的比较研究[J].医学与社会,2017,30(4):73-76. DOI:10.13723/j. yxysh.2017.04.022.
[12]龚湖萍,魏清风,谢志芬,等.农村宫颈癌患者自我感受负担及影响因素研究[J].护理管理杂志,2017,17(3):153-155.
[13]KAREN L H,HILARE S,ANNA L H.Acceptability of thedistress thermometer and problem list to community-basedtelephone cancer helpline operators,and to cancer patientsand carers[J].BMC Cancer,2011,46(11):1-8.
[14] KARIN-OECHSLE M D,MARIE G W,CARSTEN-BOKE-MEYER M D,et al.Relationship between symptom burden,distress and sense of dignity in terminally ill cancer pa-tients[J]. Journal of Pain and Symptom Management,2014,48(3):313-321.DOI:10.1186/1471-2407-11-46.
[15]LEE J J,LONG A C,CURTIS J R,et al.The influence ofrace ethnicity and education on family ratings of the qualityof dyingin the ICU[J].Journal of Pain and Symptom Man-agement,2016,51(1):9-16. DOI:10. 1016/j. jpainsym-man.2015.08.008.
[16]DONG F Q,ZHENG R S,CHEN X L,et al.Caring for dyingcancer patients in the Chinese cultural context:a qualitativestudy from the perspectives of physicians and nurses[J].Eu-ropean Journal of Oncology Nursing,2016,21(6):189-196.DOI:10.1016/j.ejon.2015.10.003.
[17]魏亚红,王龙,薛璐.晚期癌症患者的尊严疗法[J].医学研究与教育,2018,35(3):59-64. DOI:10.969/j. issn.1674-490X.2018.03.011.
[18]邓珍珍,刘化侠,田靖,等.中晚期癌症病人尊严丧失与社会支持的相关性研究[J].护理研究,2017,31(16):2031-2034.DOI:10.3969/j.issn.1009-6493.2017.16.034.
[19]随意,邢凤梅,朱亮,等.中晚期肺癌化疗患者营养状况及影响因素研究[J].护理管理杂志,2018,18(11):799-803.DOI:10.3969/j.issn.1671-315x.2018.011.010.
[20]HALL S,JOANNA M D,WEI G,et al.Patterns of dignityrelated distress at the end of life:a cross-sectional study ofpatients with advanced cancer and care home residents[J].Palliative Medicine,2014,28(9):1118-1127. DOI:10.1177/0269216314533740.
[21]魏淑青,李德龙,张溪,等.晚期癌症患者尊严负面情绪与生命质量的相关性研究[J].中国药物与临床,2017,17(12):1878-1879.DOI:10.11655/zgywylc2017.10.026.
[22]王岩,刘丽华,付玉芳,等.乳腺癌患者癌因性疲乏、应对方式及生活质量的研究[J].护理管理杂志, 2015,15(7):477-480.
[23]BARBER B,DERGOUSOFF J,NESBITT M,et al.Depres-sion as a predictor of Postoperative Functional PerformanceStatus(PFPS)and treatment adherence in head and neckcancer patients:a prospective study[J].Journal of Otolar-yngology Head&Neck Surgery,2015,44(1):1-8.DOI:10.1186/s40463-015-0092-4.
[24]HENRY M,HABIB L A,MORRISON M,et al.Head andneck cancer patients want us to support them psychologi-cally in the posttreatment period:survey results[J].PalliatSupport Care, 2014, 12(6):481-493. DOI:10. 1017/S1478951513000771.
[25]KATIE M O,AILEEN T,PHYLLIS B,et al. Associationsbetween neighbourhood support and financial burden withunmet needs of head and neck cancer survivors[J].OralOncology,2017,65(5):57-64.DOI:10.1016/j.oraloncol-ogy.2016.12.019.
[26]LEUNG K Y,COHEN D.Within-and between-culture var-iation:individual differences and the cultural logics of hon-or,face,and dignity cultures[J].Journal of Personality andSocial Psychology,2011,100(3):507-526.DOI:10.1037/a0022151.
[27]周丹丹,王美玲,王娟,等.癌症患者疾病获益感对自我管理效能感影响的研究[J].护理管理杂志,2018,18(3):158-161.DOI:10.3969/j.Issn.1671-315x.2018.03.002.
[28]CHOCHINOV H M,KRISTJANSON L J,BREITBART W,et al.Effect of dignity therapy ondistress and end-of-lifeexperience in terminally ill patients:a randomised con-trolled trial[J]. The Lancet Oncology, 2011, 12(8):753-762.
[29]ZOLEIKHA A,AZAD R,HESHMATI-NABAVI F,et al.Perceptions of iranian cancer patients regarding respectingtheir dignity in hospital snettings[J].Asian Pacific Journalof Cancer Prevention,2015,16(13):5452-5458.
[30]SUE H,CASSIE G,WPECK P W.It makes you feel thatsomebody is out there caring:a qualitative study of inter-vention and control participants’perceptions of the benefitsof taking part in an evaluation of dignity therapy for peoplewith advanced cancer[J]. Journal of Pain and SymptomManagement,2013,45(4):712-725.DOI:10.1016/j.jpainsymman.2012.03.009.
[31]WATSON M,KISSANE D.Handbook of psychotherapy incancer care[J]. Indian Journal of Palliative Care,2012,18(3):230-231.
[32]HOUMZNN L J,RYDAHL-HANSEN S,CHOCHINOV HM,et al.Testing the feasibility of the dignity therapy inter-view:adaptation for the Danish culture[J].BMC PalliativeCare,2010,9(1):21-22.DOI:10.1186/1472-684X-9-21.
[33]JOHNSTON B,LARKIN P,CONNOLLY M,et al.Dignityconserving care in palliative care settings:an integrative re-view[J].Journal of Clinical Nursing,2015,24(13-14):1743-1772.
[34]ANDY H Y H,JOSIP C,MOON-HO R H,et al.A novelfamily dignity intervention(FDI)for enhancing and infor-ming holistic palliative care in Asia:study protocol for arandomized controlled trial[J]. Trials, 2017, 18(1):587-599.DOI:10.1186/s13063-017-2325-5.
[35]BERNAT J K,HELFT P R,WILHELM L R,et al.Pilotingan abbreviated dignity therapy intervention using a legacybuilding web portal for adults with terminal cancer:a feasi-bility and acceptability study[J].Psycho-oncology,2015,24(6):1823-1825.DOI:10.1002/pon.3790.
[36]明星,赵继军.晚期癌症患者生命意义干预方案的构建与应用效果研究[J].护理管理杂志,2017,17(3):195-198.
[37]BREITBRAT W,POPPITO S,ROSENFELD B,et al.Pilotrandomized controlled trial of individual meaning-centeredpsychotherapy for patients with advanced cancer[J].Jour-nal of Clinical Oncology,2012,30(12):1304-1309.DOI:10.1200/JCO.2011.36.2517.
[38]BOVERO A,ALESSANDRO-SEDGHI N,BOTTO R,et al.Dignity in cancer patients with a life expectancy of a fewweeks.Implementation of the factor structure of the PatientDignity Inventory and dignity assessment for apatient-cen-tered clinical intervention:a cross-sectional study[J].Palliat Support Care,2018,10(1):1-8.DOI:10.1017/S147895151700102X.
[39]STAGG E K,LAZENBY M.Best practices for the nonphar-macological treatment of depression at the end of life[J].The American Journal of Hospice,2012,29(3):183-194.DOI:10.1177/1049909111413889.
[40]MOK E,LAU K P,LAI T,et al.The meaning of life inter-vention for patients with advanced-stage cancer:develop-ment and pilot study[J].Oncology Nursing Forum,2012,39(6):480-488.
[41]HENRY M,COHEN R S,LEE V,et al.The meaning-mak-ing intervention(MMI)appears to increase meaning in lifein advanced ovarian cancer:a randomized controlled pilotstudy[J].Psycho-oncology,2010,19(12):532-539.
[2]JEMAL A,WARD E M,JOHNSON C J,et al.Annual reportto the nation on the status of cancer,1975-2014,FeaturingSurvival[J].Journal of the National Cancer Institute,2017,109(9):1-22.
[3]王云岭.现代医学情境下死亡的尊严研究[D].济南:山东大学,2011.
[4]宁晓东,张永炼,杨春,等.尊严疗法对住院晚期癌症患者生活满意度及心理状况的影响[J].中国护理管理,2018,18(3):306-311. DOI:10. 3969/j. issn. 1672-1756.2018.03.005.
[5]曹艳梅,薛云珍,葛国靖,等.晚期癌症患者尊严现状及影响因素研究[J].护理学报,2017,24(7):30-34.DOI:10.16460/j.issn1008-9969.2017.07.030.
[6]CHOCHINOV H M,HACK T,MCCLEMENT S,et al. Thepatient dignity inventory:a novel way of measuring dignityrelated distress in palliative care[J]. Journal of Pain andSymptom Management, 2008, 36(6):559-571. DOI:10.1016/j.jpainsymman.2007.12.018.
[7]葛国靖,曹艳梅.中文版患者尊严量表初步修订及信、效度评价[J].中国公共卫生,2015,12(3):1-4. DOI:10.11847/zgggws2016-32-08-21.
[8]VLUG M G,DEVET H C W,PASMAN H R W,et al.Thedevelopment of an instrument to measure factors that influ-ence self-perceived dignity[J].Journal of Palliative Medi-cine,2011,14(5):578-580.DOI:10.1089/jpm.2010.0513.
[9]MIYASHITA M,MORITA T,SATO K,et al.Good Death In-ventory:a measure for evaluating good death from the be-reaved family member's perspective[J].Journal of Pain andSymptom Management, 2008, 35(5):486-498. DOI:10.1016/j.jpainsymman.2007.07.009.
[10]HACK T,CHOCHINOV H M,HASSARD T,et al.Definingdignity in terminally ill cancer patients:a factor-analyticapproach[J]. Psychocncology,2004,13(10):700-708.DOI:10.1002/pon.786.
[11]冯佳菏,薛云珍,孙轶文,等.山西省两家肿瘤医院晚期癌症患者尊严现状及其情绪、生命质量的比较研究[J].医学与社会,2017,30(4):73-76. DOI:10.13723/j. yxysh.2017.04.022.
[12]龚湖萍,魏清风,谢志芬,等.农村宫颈癌患者自我感受负担及影响因素研究[J].护理管理杂志,2017,17(3):153-155.
[13]KAREN L H,HILARE S,ANNA L H.Acceptability of thedistress thermometer and problem list to community-basedtelephone cancer helpline operators,and to cancer patientsand carers[J].BMC Cancer,2011,46(11):1-8.
[14] KARIN-OECHSLE M D,MARIE G W,CARSTEN-BOKE-MEYER M D,et al.Relationship between symptom burden,distress and sense of dignity in terminally ill cancer pa-tients[J]. Journal of Pain and Symptom Management,2014,48(3):313-321.DOI:10.1186/1471-2407-11-46.
[15]LEE J J,LONG A C,CURTIS J R,et al.The influence ofrace ethnicity and education on family ratings of the qualityof dyingin the ICU[J].Journal of Pain and Symptom Man-agement,2016,51(1):9-16. DOI:10. 1016/j. jpainsym-man.2015.08.008.
[16]DONG F Q,ZHENG R S,CHEN X L,et al.Caring for dyingcancer patients in the Chinese cultural context:a qualitativestudy from the perspectives of physicians and nurses[J].Eu-ropean Journal of Oncology Nursing,2016,21(6):189-196.DOI:10.1016/j.ejon.2015.10.003.
[17]魏亚红,王龙,薛璐.晚期癌症患者的尊严疗法[J].医学研究与教育,2018,35(3):59-64. DOI:10.969/j. issn.1674-490X.2018.03.011.
[18]邓珍珍,刘化侠,田靖,等.中晚期癌症病人尊严丧失与社会支持的相关性研究[J].护理研究,2017,31(16):2031-2034.DOI:10.3969/j.issn.1009-6493.2017.16.034.
[19]随意,邢凤梅,朱亮,等.中晚期肺癌化疗患者营养状况及影响因素研究[J].护理管理杂志,2018,18(11):799-803.DOI:10.3969/j.issn.1671-315x.2018.011.010.
[20]HALL S,JOANNA M D,WEI G,et al.Patterns of dignityrelated distress at the end of life:a cross-sectional study ofpatients with advanced cancer and care home residents[J].Palliative Medicine,2014,28(9):1118-1127. DOI:10.1177/0269216314533740.
[21]魏淑青,李德龙,张溪,等.晚期癌症患者尊严负面情绪与生命质量的相关性研究[J].中国药物与临床,2017,17(12):1878-1879.DOI:10.11655/zgywylc2017.10.026.
[22]王岩,刘丽华,付玉芳,等.乳腺癌患者癌因性疲乏、应对方式及生活质量的研究[J].护理管理杂志, 2015,15(7):477-480.
[23]BARBER B,DERGOUSOFF J,NESBITT M,et al.Depres-sion as a predictor of Postoperative Functional PerformanceStatus(PFPS)and treatment adherence in head and neckcancer patients:a prospective study[J].Journal of Otolar-yngology Head&Neck Surgery,2015,44(1):1-8.DOI:10.1186/s40463-015-0092-4.
[24]HENRY M,HABIB L A,MORRISON M,et al.Head andneck cancer patients want us to support them psychologi-cally in the posttreatment period:survey results[J].PalliatSupport Care, 2014, 12(6):481-493. DOI:10. 1017/S1478951513000771.
[25]KATIE M O,AILEEN T,PHYLLIS B,et al. Associationsbetween neighbourhood support and financial burden withunmet needs of head and neck cancer survivors[J].OralOncology,2017,65(5):57-64.DOI:10.1016/j.oraloncol-ogy.2016.12.019.
[26]LEUNG K Y,COHEN D.Within-and between-culture var-iation:individual differences and the cultural logics of hon-or,face,and dignity cultures[J].Journal of Personality andSocial Psychology,2011,100(3):507-526.DOI:10.1037/a0022151.
[27]周丹丹,王美玲,王娟,等.癌症患者疾病获益感对自我管理效能感影响的研究[J].护理管理杂志,2018,18(3):158-161.DOI:10.3969/j.Issn.1671-315x.2018.03.002.
[28]CHOCHINOV H M,KRISTJANSON L J,BREITBART W,et al.Effect of dignity therapy ondistress and end-of-lifeexperience in terminally ill patients:a randomised con-trolled trial[J]. The Lancet Oncology, 2011, 12(8):753-762.
[29]ZOLEIKHA A,AZAD R,HESHMATI-NABAVI F,et al.Perceptions of iranian cancer patients regarding respectingtheir dignity in hospital snettings[J].Asian Pacific Journalof Cancer Prevention,2015,16(13):5452-5458.
[30]SUE H,CASSIE G,WPECK P W.It makes you feel thatsomebody is out there caring:a qualitative study of inter-vention and control participants’perceptions of the benefitsof taking part in an evaluation of dignity therapy for peoplewith advanced cancer[J]. Journal of Pain and SymptomManagement,2013,45(4):712-725.DOI:10.1016/j.jpainsymman.2012.03.009.
[31]WATSON M,KISSANE D.Handbook of psychotherapy incancer care[J]. Indian Journal of Palliative Care,2012,18(3):230-231.
[32]HOUMZNN L J,RYDAHL-HANSEN S,CHOCHINOV HM,et al.Testing the feasibility of the dignity therapy inter-view:adaptation for the Danish culture[J].BMC PalliativeCare,2010,9(1):21-22.DOI:10.1186/1472-684X-9-21.
[33]JOHNSTON B,LARKIN P,CONNOLLY M,et al.Dignityconserving care in palliative care settings:an integrative re-view[J].Journal of Clinical Nursing,2015,24(13-14):1743-1772.
[34]ANDY H Y H,JOSIP C,MOON-HO R H,et al.A novelfamily dignity intervention(FDI)for enhancing and infor-ming holistic palliative care in Asia:study protocol for arandomized controlled trial[J]. Trials, 2017, 18(1):587-599.DOI:10.1186/s13063-017-2325-5.
[35]BERNAT J K,HELFT P R,WILHELM L R,et al.Pilotingan abbreviated dignity therapy intervention using a legacybuilding web portal for adults with terminal cancer:a feasi-bility and acceptability study[J].Psycho-oncology,2015,24(6):1823-1825.DOI:10.1002/pon.3790.
[36]明星,赵继军.晚期癌症患者生命意义干预方案的构建与应用效果研究[J].护理管理杂志,2017,17(3):195-198.
[37]BREITBRAT W,POPPITO S,ROSENFELD B,et al.Pilotrandomized controlled trial of individual meaning-centeredpsychotherapy for patients with advanced cancer[J].Jour-nal of Clinical Oncology,2012,30(12):1304-1309.DOI:10.1200/JCO.2011.36.2517.
[38]BOVERO A,ALESSANDRO-SEDGHI N,BOTTO R,et al.Dignity in cancer patients with a life expectancy of a fewweeks.Implementation of the factor structure of the PatientDignity Inventory and dignity assessment for apatient-cen-tered clinical intervention:a cross-sectional study[J].Palliat Support Care,2018,10(1):1-8.DOI:10.1017/S147895151700102X.
[39]STAGG E K,LAZENBY M.Best practices for the nonphar-macological treatment of depression at the end of life[J].The American Journal of Hospice,2012,29(3):183-194.DOI:10.1177/1049909111413889.
[40]MOK E,LAU K P,LAI T,et al.The meaning of life inter-vention for patients with advanced-stage cancer:develop-ment and pilot study[J].Oncology Nursing Forum,2012,39(6):480-488.
[41]HENRY M,COHEN R S,LEE V,et al.The meaning-mak-ing intervention(MMI)appears to increase meaning in lifein advanced ovarian cancer:a randomized controlled pilotstudy[J].Psycho-oncology,2010,19(12):532-539.