新生儿疾病筛查现况调查及其相关因素研究
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摘要
【目的】了解合肥市新生儿未做疾病筛查原因及其相关因素,为后续健康教育提供依据。【方法】采用分层整群抽样方法,以城乡分层,以医院为单位整群选取2011年5月1日-7月31日出生新生儿的家长共2 170名作为研究对象,采用自编的调查问卷,对家长进行未做疾病筛查原因调查。【结果】新生儿疾病未筛查率为14.05%。其中39%的家长主观上愿意进行代谢病筛查,但由于各种客观原因未做代谢病筛查;61%的家长主观不愿意进行筛查。多因素分析结果显示,新生儿分娩方式、分娩医院类型、宝宝胎龄、新筛知识问卷得分与未做疾病筛查相关联。【结论】目前合肥市新生儿未进行疾病筛查的现象在各级医院均存在,制定有效的健康教育方案、提高家长预防保健意识应成为推进新生儿疾病筛查工作的重要内容。
【Objective】 To analyse the causes of without disease screening and its related factors among newborn in Hefei,and to provide basis for follow-up health education.【Methods】 A total of 2 170 parents whose baby was born on 1 May to 31 July of 2011 were recruited form different levels hospitals by stratified-cluster sampling method in Hefei.They completed the self-rating scale of disease screening.【Results】 The rate of neonatal without screening was 14.05%,39% of those parents were willing to do neonatal metabolic screening subjectivly,but their babies did not making screening due to various objective reasons.61% of those parents were not willing to do neonatal metabolic screening subjectivly.Logistic regression analysis revealed that neonatal without screening was significantly related to mode of delivery,type of birth hospital,gestational age,score of neonatal screening questionnaire.【Conclusion】 The phenomenon of neonatal without screening existed in different levels hospitals,and developing effective education programs to improve the preventive healthcare awareness of parents should be priority of neonatal screening.
【Objective】 To analyse the causes of without disease screening and its related factors among newborn in Hefei,and to provide basis for follow-up health education.【Methods】 A total of 2 170 parents whose baby was born on 1 May to 31 July of 2011 were recruited form different levels hospitals by stratified-cluster sampling method in Hefei.They completed the self-rating scale of disease screening.【Results】 The rate of neonatal without screening was 14.05%,39% of those parents were willing to do neonatal metabolic screening subjectivly,but their babies did not making screening due to various objective reasons.61% of those parents were not willing to do neonatal metabolic screening subjectivly.Logistic regression analysis revealed that neonatal without screening was significantly related to mode of delivery,type of birth hospital,gestational age,score of neonatal screening questionnaire.【Conclusion】 The phenomenon of neonatal without screening existed in different levels hospitals,and developing effective education programs to improve the preventive healthcare awareness of parents should be priority of neonatal screening.
引文
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[2]Loeber JG.Neonatal screening in Europe;the situation in 2004[J].J Inherit Metab Dis,2007,30,430-438.
[3]赵正言.国际新生儿疾病筛查进展[J].中国儿童保健杂志,2012,20(3):193-195.
[4]沈晓明.对我国新生儿疾病筛查的思考与建议[J].中华儿科杂志,2009,47(9):641-643.
[5]胡海利,傅苏林,邵子瑜,等.2008～2009年合肥市新生儿疾病筛查不合格血片原因分析[J].中国妇幼保健,2011,26(2):199-201.
[6]孙巧玲.安徽省新生儿疾病筛查现况、存在问题及对策[R].合肥:安徽省妇幼保健所,2010.
[7]Borrajo GJC.Newborn screening in Latin America at the be-ginning of the 21st century[J].J Inherit Metab Dis,2007,30:466-481.
[8]陈瀚钰,吕军,孙晓明,等.上海市新生儿CH筛查患儿家长意向评价[J].中国妇幼保健,2008,23(36):5119-5120.
[9]江剑辉.重视新生儿疾病筛查能力建设努力提高筛查服务水平[J].广东医学,2009,30(9):1213-11214.
[10]Bradford L,Adams TJ.Newborn screening in North Ameri-ca[J].J Inherit Metab Dis,2007,30:447-465.
[11]章伟芳,徐艳华,杨茹莱,等.我省新生儿疾病筛查工作管理模式研究[J].中华医院管理杂志,2008,24(10):713-715.