基于互联网络的延续护理对川崎病并发冠状动脉瘤患儿家庭照顾负担的影响
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摘要
目的探讨基于互联网络的延续护理对减轻川崎病并发冠状动脉瘤患儿家庭照顾负担的影响。方法选取川崎病并发冠状动脉瘤的连续病例68例,根据使用互联网络平台前后分为对照组33例和干预组35例。对照组使用常规的出院指导,干预组在此基础上采用微信、QQ、手机App等各形式实施延续护理。比较两组在出院后6个月在家庭负担会谈量表(FBS)、川崎病知识问卷得分。结果干预6个月后干预组照顾者的家庭日常活动、家庭娱乐活动、家庭关系、家庭成员躯体健康、心理健康维度评分及家庭负担总分显著低于对照组(P<0.05,P<0.01);川崎病知识问卷得分显著高于对照组(P<0.01)。结论运用多种网络工具下的延续护理可以提高川崎病并发冠状动脉瘤患儿照护者对疾病的掌握度,减轻患儿的家庭负担。
Objective To explore the effect of internet-based continuous nursing care on burden of care in families of children with Kawasaki disease complicated by coronary artery aneurysm.Methods A total of 68 consecutive cases of Kawasaki disease complica-ted with coronary artery aneurysm were selected, and divided into a control group(n=33), who received routine discharge gui-dance, and an intervention group(n=35), who received continuous nursing care through WeChat, QQ, App, etc. Six months after discharge, the Family Burden Interview Scale(FBIS) and Kawasaki Disease Knowledge Questionnaire were used to measure the effect.Results Scores of family daily activities, family recreational activities, family relations, family members′physical and psychological dimensions, and total burden scores were lower, and Kawasaki disease knowledge scores higher, in the intervention group, than those in the control group(P<0.05,P<0.01).Conclusion Continuous nursing care delivered through various internet-based tools can facilitate caregivers′ mastery of the disease and reduce the burden of care in families of children with Kawasaki disease complicated with coronary artery aneurysm.
Objective To explore the effect of internet-based continuous nursing care on burden of care in families of children with Kawasaki disease complicated by coronary artery aneurysm.Methods A total of 68 consecutive cases of Kawasaki disease complica-ted with coronary artery aneurysm were selected, and divided into a control group(n=33), who received routine discharge gui-dance, and an intervention group(n=35), who received continuous nursing care through WeChat, QQ, App, etc. Six months after discharge, the Family Burden Interview Scale(FBIS) and Kawasaki Disease Knowledge Questionnaire were used to measure the effect.Results Scores of family daily activities, family recreational activities, family relations, family members′physical and psychological dimensions, and total burden scores were lower, and Kawasaki disease knowledge scores higher, in the intervention group, than those in the control group(P<0.05,P<0.01).Conclusion Continuous nursing care delivered through various internet-based tools can facilitate caregivers′ mastery of the disease and reduce the burden of care in families of children with Kawasaki disease complicated with coronary artery aneurysm.
引文
[1] 张丽,于明华,施婷婷,等.川崎病并发巨大冠状动脉瘤的远期预后研究[J].中国循证儿科杂志,2010,5(3):187-193.
[2] George L K, Gwyther L P.Caregiver well-being: a multidimensional examination of family caregivers of demen-ted adults[J].Gerontologist,1986,26(3):253-259.
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[4] 中华医学会儿科学分会心血管学组.川崎病冠状动脉病变的临床处理建议[J].中华儿科杂志,2012,50(10):746-749.
[5] 林瑶,李晓惠,石琳,等.2017年版《川崎病的诊断、治疗及远期管理——美国心脏协会对医疗专业人员的科学声明》解读[J].中国实用儿科杂志,2017,32(9):641-648.
[6] Pai S, Kapur R L.The burden on the family of a psychiatric patient: development of an interview schedule[J].Br J Psychiatry,1981,138:332-335.
[7] 陈辉,杜玉开,贾桂珍,等.家庭负担会谈量表测量伤害患者家庭负担的信度与效度评价[J].华中科技大学学报(医学版),2003,32(5):561-563.
[8] McCrindle B W, Rowley A H, Newburger J W, et al.Diagnosis, treatment, and long-term management of Kawasaki disease: a scientific statement for health professionals from the American Heart Association[J].Circulation,2017,135(17):e927-e999.
[9] 黎健.川畸病患儿父母的心理反应及护理对策[J].齐齐哈尔医学院学报,2010,31(12):1974-1975.
[10] 俞文敏,王杰,周宏宇,等.健康需求者对健康类网站的知识需求调查[J].护理学杂志,2009,24(9):86-87.
[11] 陈静华,蹇英.微信可持续教育对川崎病患儿家长教育的可行性及效果评价[J].东南国防医药,2018,20(2):196-199.
[2] George L K, Gwyther L P.Caregiver well-being: a multidimensional examination of family caregivers of demen-ted adults[J].Gerontologist,1986,26(3):253-259.
[3] 朱琴,颜巧元.互联网用于老年患者延续护理的研究进展[J].中华护理杂志,2016,51(10):1221-1225.
[4] 中华医学会儿科学分会心血管学组.川崎病冠状动脉病变的临床处理建议[J].中华儿科杂志,2012,50(10):746-749.
[5] 林瑶,李晓惠,石琳,等.2017年版《川崎病的诊断、治疗及远期管理——美国心脏协会对医疗专业人员的科学声明》解读[J].中国实用儿科杂志,2017,32(9):641-648.
[6] Pai S, Kapur R L.The burden on the family of a psychiatric patient: development of an interview schedule[J].Br J Psychiatry,1981,138:332-335.
[7] 陈辉,杜玉开,贾桂珍,等.家庭负担会谈量表测量伤害患者家庭负担的信度与效度评价[J].华中科技大学学报(医学版),2003,32(5):561-563.
[8] McCrindle B W, Rowley A H, Newburger J W, et al.Diagnosis, treatment, and long-term management of Kawasaki disease: a scientific statement for health professionals from the American Heart Association[J].Circulation,2017,135(17):e927-e999.
[9] 黎健.川畸病患儿父母的心理反应及护理对策[J].齐齐哈尔医学院学报,2010,31(12):1974-1975.
[10] 俞文敏,王杰,周宏宇,等.健康需求者对健康类网站的知识需求调查[J].护理学杂志,2009,24(9):86-87.
[11] 陈静华,蹇英.微信可持续教育对川崎病患儿家长教育的可行性及效果评价[J].东南国防医药,2018,20(2):196-199.
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