Health-related quality of life in children and youth with acquired brain injury: Two years after injury

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• 作者：Esther C. Ilmer^a ; ^b ; ^{eilmer@rijndam.nl" class="auth_mail" title="E-mail the corresponding author} ; Suzanne A.M. Lambregts^a ; ^c ; Monique A.M. Berger^d ; Arend J. de Kloet^d ; ^e ; Sander R. Hilberink^a ; Marij E. Roebroeck^a ; ^b
• 关键词：Brain injury ; Quality of life ; Long-term outcome ; Children ; Youth ; Young adults
• 刊名：European Journal of Paediatric Neurology
• 出版年：2016
• 出版时间：January 2016
• 年：2016
• 卷：20
• 期：1
• 页码：131-139
• 全文大小：449 K

文摘

To determine health-related quality of life (HRQoL) in children and youth with acquired brain injury (ABI) two years post-injury and explore associated factors.

Design

Cross-sectional.

Subjects

Children and youth (n = 72; aged 6–22 years) with mild to severe ABI (87% mild).

Methods

The primary outcome measures self-reported and parent-reported HRQoL were assessed with the Paediatric Quality of Life Inventory (PedsQL) and compared with age-appropriate reference values of the Dutch population. Spearman correlation coefficients (R_s) were used to explore relationships between HRQoL and sociodemographic and ABI characteristics, severity of impairments and presence of post-injury problems.

Results

Children and youth with ABI and the reference population had similar self-reported HRQoL. However, as reported by parents, children with ABI aged 6–7 years and youth aged 13–18 years had poorer HRQoL regarding psychosocial health. Children's post-injury cognitive, behavioural and social problems were moderately associated with poorer HRQoL, especially psychosocial health (R_s ≥ 0.40). Severity nor type of injury were associated with children's HRQoL.

Conclusion

Two years post-injury, in children and youth with mild to severe ABI, reported HRQoL is similar to that in the general population, whereas parents reported less favourable outcomes. Post-injury cognitive, behavioural and social problems require ongoing attention during long-term follow-up.