Symptom frequency, severity, and quality of life among persons with three disease trajectories: cancer, ALS, and CHF

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• 作者：Jiayun Xu ; BSN ; RN^a ; ^{jxu32@jhu.edu" class="auth_mail" title="E-mail the corresponding author} ; Marie T. Nolan ; PhD ; RN^a ; ^{mnolan3@jhu.edu" class="auth_mail" title="E-mail the corresponding author} ; Katherine Heinze ; BSN ; RN^a ; ^{kgriff12@jhu.edu" class="auth_mail" title="E-mail the corresponding author} ; Gayane Yenokyan ; PhD ; MHS^b ; ^{gyenoky1@jhu.edu" class="auth_mail" title="E-mail the corresponding author} ; Mark T. Hughes ; MD ; MA^c ; ^{mthughes@jhmi.edu" class="auth_mail" title="E-mail the corresponding author} ; Julie Johnson ; MPH ; RN^d ; ^{jjohnso3@medicine.bsd.uchicago.edu" class="auth_mail" title="E-mail the corresponding author} ; Joan Kub ; PhD ; MA^a ; ^{jkub1@jhu.edu" class="auth_mail" title="E-mail the corresponding author} ; Carrie Tudor ; PhD ; MPH^a ; ^{ctudor2@jhu.edu" class="auth_mail" title="E-mail the corresponding author} ; Daniel P. Sulmasy ; MD ; PhD^d ; ^{dsulmasy@bsd.uchicago.edu" class="auth_mail" title="E-mail the corresponding author} ; Lisa Soleymani Lehmann ; MD ; PhD^e ; ^{LLEHMANN1@PARTNERS.ORG" class="auth_mail" title="E-mail the corresponding author} ; Joseph J. Gallo ; MD ; MPH^b ; ^{jgallo@jhsph.edu" class="auth_mail" title="E-mail the corresponding author} ; Felicia Rockko ; BSN ; RN^a ; ¹ ; ^{felicia.rockko@gmail.com" class="auth_mail" title="E-mail the corresponding author} ; Mei Ching Lee ; PhD ; RN^a ; ² ; ^{lee@son.umaryland.edu" class="auth_mail" title="E-mail the corresponding author}
• 关键词：Chronic disease ; End of life ; Symptoms ; Quality of life
• 刊名：Applied Nursing Research
• 出版年：2015
• 出版时间：November 2015
• 年：2015
• 卷：28
• 期：4
• 页码：311-315
• 全文大小：269 K

文摘

National reports on end-of-life symptom management reveal a gap in the evidence regarding symptoms other than pain and studies of diseases other than cancer. This study examines the frequency and severity of symptoms and quality of life (QOL) in persons with advanced cancer, amyotrophic lateral sclerosis (ALS), and congestive heart failure (CHF).

Methods

The present study is a cross-sectional examination of symptoms and QOL measured using the McGill QOL Questionnaire, among 147 participants.

Results

Forty one percent of participants had advanced cancer, 22% had ALS, and 37% had advanced CHF. A total of 266 symptoms were reported, with the common symptom categories being discomfort/pain, weakness/fatigue/sleep, and respiratory. Participants with CHF had the highest mean symptom severity and the lowest QOL.

Conclusion

Clinicians should be aware and attentive for symptoms other than pain in patients with advanced illness. Studies on diseases other than cancer, such as CHF and ALS, are important to improve symptom management in all disease groups.