Mitochondrial disease patients' perception of dietary supplements' use
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- 作者：Amel Karaaa ; 1 ; akaraa@mgh.harvard.edu" class="auth_mail" title="E-mail the corresponding author ; Joshua Krigerb ; jk3563@cumc.columbia.edu" class="auth_mail" title="E-mail the corresponding author ; Johnston Grierb ; jg3145@cumc.columbia.edu" class="auth_mail" title="E-mail the corresponding author ; Amy Holbertc ; amy.holbert@epi.usf.edu" class="auth_mail" title="E-mail the corresponding author ; John L.P. Thompsonb ; jlt12@cumc.columbia.edu" class="auth_mail" title="E-mail the corresponding author ; Sumit Parikhd ; parikhs@ccf.org" class="auth_mail" title="E-mail the corresponding author ; Michio Hiranoe ; mh29@cumc.columbia.edu" class="auth_mail" title="E-mail the corresponding author
- 关键词：NAMDC ; North American Mitochondrial Disease Consortium ; RDCRN ; Rare Disease Clinical Research Network ; MD ; mitochondrial disease ; CPEO ; chronic progressive external ophthalmoplegia ; MELAS ; mitochondrial encephalomyopathy with lactic acidosis and stroke ; MERRF ; myoclonic epilepsy with ragged red fibers
- 刊名：Molecular Genetics and Metabolism
- 出版年：2016
- 出版时间：September-October 2016
- 年：2016
- 卷：119
- 期：1-2
- 页码：100-108
- 全文大小：229 K
文摘
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Mitochondrial disease patients highlight their experiences taking dietary supplements.
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Most patients take more than four supplements.
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The majority of patients reported health benefits with mild side-effect profile.
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Supplements impose a large financial burden without rigorous proof of health benefit.