Family carers' experiences of receiving the news of a diagnosis of Motor Neurone Disease: A national survey

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• 作者：Samar M Aoun^a ; ^{s.aoun@curtin.edu.au} ; Lauren J Breen^b ; ^{Lauren.Breen@curtin.edu.au} ; David Oliver^c ; ^{drdjoliver@gmail.com} ; Robert D Henderson^d ; ^{Robert.Henderson@health.qld.gov.au} ; Robert Edis^e ; ^{robedis@it.net.au} ; Margaret O'Connor^f ; ^{mmoconnor@swin.edu.au} ; Denise Howting^g ; ^{denise.howting@curtin.edu.au} ; Rodney Harris^h ; ^{rharris@mnd.asn.au} ; Carol Birksⁱ ; ^{carolb@mndaust.asn.au}
• 关键词：MND/ALS ; Family carers ; Breaking bad news ; Empathy ; SPIKES protocol ; MND diagnosis
• 刊名：Journal of the Neurological Sciences
• 出版年：2017
• 出版时间：15 January 2017
• 年：2017
• 卷：372
• 期：Complete
• 页码：144-151
• 全文大小：430 K
• 卷排序：372

文摘

Communicating the diagnosis of MND should always include family carers Information on support provided by MND Associations should be available at diagnosis More attention given to family carers as a vital member of the MND care triad The duration of the consultation is a major factor that affected satisfaction Lack of empathy by some neurologists is a major source of dissatisfaction Neurologists may require education and training in communicating an MND diagnosis