How Variable Is Our Delivery of Information? Approaches to Patient Education About Oral Chemotherapy in the Pediatric Oncology Clinic
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- 作者：Justine M. Kahn ; MD ; jmk9015@nyp.orgAuthor Vitae ; Uma H. Athale ; MD ; MScAuthor Vitae ; Luis A. Clavell ; MDAuthor Vitae ; Peter D. Cole ; MDAuthor Vitae ; Jean-Marie Leclerc ; MDAuthor Vitae ; Caroline Laverdiere ; MDAuthor Vitae ; Bruno Michon ; MD ; FRCPCAuthor Vitae ; Marshall A. Schorin ; MDAuthor Vitae ; Jennifer J.G. Welch ; MDAuthor Vitae ; Stephen E. Sallan ; MDAuthor Vitae ; Lewis B. Silverman ; MDAuthor Vitae ; Kara M. Kelly ; MDAuthor Vitae
- 关键词：Pediatric ; leukemia ; adherence ; cancer care delivery ; patient education
- 刊名：Journal of Pediatric Health Care
- 出版年：2017
- 出版时间：January-February 2017
- 年：2017
- 卷：31
- 期：1
- 页码：e1-e6
- 全文大小：151 K
- 卷排序：31
文摘
In pediatric patients with acute lymphoblastic leukemia, adherence to oral chemotherapy relies largely on a parent's comprehension of the drug's indication and administration guidelines. We assessed how pediatric oncology providers educate families about oral chemotherapy. We conducted a cross-sectional survey of 68 physicians and nurses from 9 institutions in the Dana-Farber Cancer Institute Acute Lymphoblastic Leukemia Consortium. The inter-individual approach to patient education is variable and may consist of handouts, treatment calendars, and discussions. The extent of teaching often varies depending on a provider's subjective assessment of a family's needs. Twenty-five percent of providers suggested standardizing patient teaching. When developing educational models, care teams should consider approaches that (a) objectively identify families in need of extensive teaching, (b) designate allotted teaching time by nursing staff during clinic visits, and (c) maintain the variation and dynamism that informs a successful provider-patient relationship.