Parents’ experience of a follow-up meeting after a child's death in the Paediatric Intensive Care Unit

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• 关键词：Death of a child ; Follow-up ; Parent's experience ; Paediatric intensive care ; PICU ; Qualitative
• 刊名：Intensive and Critical Care Nursing
• 出版年：2017
• 出版时间：February 2017
• 年：2017
• 卷：38
• 期：Complete
• 页码：31-39
• 全文大小：821 K
• 卷排序：38

文摘

’To identify parents’ experience of a follow up meeting and to explore whether the conversation was adequate to meet the needs of parents for a follow-up after their child's death in the Paediatric Intensive Care Unit (PICU).Design and settingQualitative method utilising semi-structured interviews with six pairs of parents 2–12 weeks after the follow-up conversation. The interviews were held in the parents’ homes at their request. Data were analysed using a qualitative, descriptive approach and thematic analysis.FindingsFour main themes emerged: (i) the way back to the PICU; (ii) framework; (iii) relations and (iv) closure.ConclusionThe parents expressed nervousness before the meeting, but were all pleased to have participated in these follow-up meetings. The parents found it meaningful that the follow-up meeting was interdisciplinary, since the parents could have answers to their questions both about treatment and care. It was important that the staff involved in the follow-up meeting were those who had been present through the hospitalisation and at the time of the child's death. Parents experienced the follow-up meeting as being a closure of the course in the PICU, regardless the length of the hospitalisation.