Embracing an “African Ethos” to facilitate African immigrants participation in medical genetics and genomics research

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• 作者：Aaron G. Buseh ; PhD ; MPH ; MSN^a ; ^{aaronbg@uwm.edu} ; Patricia E. Stevens ; RN ; PhD ; FAAN^a ; Sandra Millon-Underwood ; PhD ; FAAN^a ; Sheryl T. Kelber ; MS^b ; Leolia Townsend ; MS ; MA^a
• 关键词：Barriers to participation ; Community-based participatory research ; Facilitators to participation ; Genetics and genomics ; Health disparities ; African immigrants and genetics
• 刊名：Nursing Outlook
• 出版年：2017
• 出版时间：January-February 2017
• 年：2017
• 卷：65
• 期：1
• 页码：9-17
• 全文大小：337 K
• 卷排序：65

文摘

Hailed as a new frontier in medicine, genetics, and genomics advances also raises a myriad of important ethical challenges. The results of this study highlight the importance of researchers and genetic counselors to understand cultural perceptions of African immigrants about their participation in genetics and genomics research. Participants in the study suggested embracing an “African Ethos” as a way for researchers to engage and facilitate their participation in genetics and genomics studies.