Active involvement of people with intellectual disabilities in health research - A structured literature review
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- 作者：Tessa Kim Frankenaa ; tessa.frankena@radboudumc.nl" class="auth_mail" title="E-mail the corresponding author ; Jenneken Naaldenberga ; jenneken.naaldenberg@radboudumc.nl" class="auth_mail" title="E-mail the corresponding author ; Mieke Cardolb ; m.cardol@hr.nl" class="auth_mail" title="E-mail the corresponding author ; Christine Linehanc ; christine.linehan@ucd.ie" class="auth_mail" title="E-mail the corresponding author ; Henny van Schrojenstein Lantman-de Valka ; henny.lantman@radboudumc.nl" class="auth_mail" title="E-mail the corresponding author
- 关键词：Intellectual disabilities ; Inclusive research ; Patient participation ; Health research ; Review
- 刊名：Research in Developmental Disabilities
- 出版年：2015
- 出版时间：October-November 2015
- 年：2015
- 卷：45-46
- 期：Complete
- 页码：271-283
- 全文大小：458 K
文摘
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Knowledge of inclusive health research is scarce.
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Theories and methods seem to be of little value to inclusive health research.
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Added value relates to improved quality and validity, but is not formally assessed.
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Barriers and facilitators of inclusive health research were presented.
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Four recommendations for inclusive health research were made.