Advance care discussions with young people affected by life-limiting neuromuscular diseases: A systematic literature review and narrative synthesis

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• 作者：Andy Hiscock^a ; ^{andrew.hiscock@nhs.net} ; Isla Kuhn^b ; Stephen Barclay^c
• 关键词：Neuromuscular diseases ; Death ; Palliative care ; End of life care ; Advance care plans
• 刊名：Neuromuscular Disorders
• 出版年：2017
• 出版时间：February 2017
• 年：2017
• 卷：27
• 期：2
• 页码：115-119
• 全文大小：420 K
• 卷排序：27

文摘

There is a significant lack of research into patients' views on end of life care. Views of family carers are predominant. Healthcare professionals are reluctant to initiate end of life conversations.