The influence of Ehlers-Danlos syndrome - hypermobility type, on motherhood: A phenomenological, hermeneutical study

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• 作者：Stijn De Baets^a ; ^{stijn.debaets@ugent.be} ; Marieke Vanhalst^a ; Marieke Coussens^a ; Lies Rombaut^b ; Fransiska Malfait^b ; Geert Van Hove^c ; Patrick Calders^a ; Guy Vanderstraeten^d ; Dominique van de Velde^a
• 关键词：Ehlers-Danlos syndrome ; Lived experiences ; Motherhood ; Participation ; Qualitative study
• 刊名：Research in Developmental Disabilities
• 出版年：2017
• 出版时间：January 2017
• 年：2017
• 卷：60
• 期：Complete
• 页码：135-144
• 全文大小：733 K
• 卷排序：60

文摘

EDS-HT causes emotional distress and a physical burden and has a major impact on social behavior. Becoming a mother when suffering from EDS-HT, is not an obvious choice. Every mother suffering from EDS-HT is in need of a ‘reorchestration’ of daily life. Rebalancing activities in daily life according to the level of fatigue and pain seems to be the core concept.