Health related quality of life and family impact of type 1 diabetes among adolescents in Saudi Arabia

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• 作者：Fadia AlBuhairan^a ; ^b ; ^{buhairanfs@ngha.med.sa" class="auth_mail" title="E-mail the corresponding author} ; Maliha Nasim^a ; Ahlam Al Otaibi^a ; ^b ; Naila A. Shaheen^a ; Saleh Al Jaser^a ; ^c ; Ibrahim Al Alwan^a ; ^b
• 关键词：Adolescents ; Type 1 diabetes ; Health related quality of life ; Saudi Arabia ; Peds QL&trade ; Interdisciplinary
• 刊名：Diabetes Research and Clinical Practice
• 出版年：2016
• 出版时间：April 2016
• 年：2016
• 卷：114
• 期：Complete
• 页码：173-179
• 全文大小：437 K

文摘

To measure the health related quality of life (HRQoL) among Saudi Arabian adolescents with type 1 diabetes mellitus (T1DM) and the impact the disease has on the family.

Methodology

A cross sectional study was conducted involving 315 adolescent patients (12–18 years) and their caregivers. Adolescent HRQoL was assessed by adolescents and their parents completing the Peds QL™ Diabetes Module 3.0. Family impact was assessed by the parent completing the Peds QL™ Family Impact module (FIM).

Results

Adolescents reported a cumulative mean HRQoL score of 64.8, while parents reported significantly lower scores of 60.3 (p = 0.003). The lowest scores reported by both adolescents and parents were for “Worry”. Female gender and late adolescent age were predictors of lower HRQoL for adolescents with T1DM. The FIM showed low scores for “Emotional functioning” (59.8) and high scores for “Family relationships” (80.9).

Conclusion

These findings emphasize the importance of an interdisciplinary, biopsychosocial and family centered care approach to adolescents with a chronic disease. Future work could assess the effectiveness of direct care involvement of adolescent and mental health experts in improving the HRQoL for this population.