Strategies to improve the quality of survival for childhood brain tumour survivors
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- 作者：Gesche Tallena ; b ; gesche.tallen@charite.de" class="auth_mail" title="E-mail the corresponding author ; Anika Reschc ; a.resch@uke.de" class="auth_mail" title="E-mail the corresponding author ; Gabriele Calaminusd ; gabriele.calaminus@ukmuenster.de" class="auth_mail" title="E-mail the corresponding author ; Andreas Wienerd ; andreas.wiener@ukmuenster.de" class="auth_mail" title="E-mail the corresponding author ; Ulrike Leisse ; ulrike.leiss@univie.ac.at" class="auth_mail" title="E-mail the corresponding author ; Thomas Pletschkoe ; thomas.pletschko@meduniwien.ac.at" class="auth_mail" title="E-mail the corresponding author ; Carsten Friedrichc ; f ; carsten.friedrich@medizin.uni-leipzig.de" class="auth_mail" title="E-mail the corresponding author ; c.friedrich@uke.de" class="auth_mail" title="E-mail the corresponding author ; Thorsten Langerg ; thorsten.langer@uksh.de" class="auth_mail" title="E-mail the corresponding author ; Desiree Grabowh ; desiree.grabow@unimedizin-mainz.de" class="auth_mail" title="E-mail the corresponding author ; Pablo Herná ; iz Drievera ; pablo.hernaiz@charite.de" class="auth_mail" title="E-mail the corresponding author ; Rolf-Dieter Kortmanni ; rolf-dieter.kortman@medizin.uni-leipzig.de" class="auth_mail" title="E-mail the corresponding author ; Beate Timmermannj ; beate.timmermann@uk-essen.de" class="auth_mail" title="E-mail the corresponding author ; Torsten Pietschk ; Torsten.Pietsch@ukb.uni-bonn.de" class="auth_mail" title="E-mail the corresponding author ; Monika Warmuth-Metzl ; warmuth_m@ukw.de" class="auth_mail" title="E-mail the corresponding author ; Brigitte Bisonl ; bison_b@ukw.de" class="auth_mail" title="E-mail the corresponding author ; Ulrich-Wilhelm Thomalem ; uthomale@charite.de" class="auth_mail" title="E-mail the corresponding author ; Jü ; rgen Kraussn ; krauss.j@ukw.de" class="auth_mail" title="E-mail the corresponding author ; Martin Mynarekc ; m.mynarek@uke.de" class="auth_mail" title="E-mail the corresponding author ; Katja von Hoffc ; k.von-hoff@uke.de" class="auth_mail" title="E-mail the corresponding author ; Holger Ottensmeiero ; ottensmeie_h@ukw.de" class="auth_mail" title="E-mail the corresponding author ; Michael Frü ; hwaldp ; michael.fruehwald@klinikum-augsburg.de" class="auth_mail" title="E-mail the corresponding author ; Christof M. Krammq ; christof.kramm@med.uni-goettingen.de" class="auth_mail" title="E-mail the corresponding author ; Petra Temmingr ; petra.temming@uk-essen.de" class="auth_mail" title="E-mail the corresponding author ; Hermann L. Mü ; llers ; mueller.hermann@klinikum-oldenburg.de" class="auth_mail" title="E-mail the corresponding author ; Olaf Wittt ; olaf.witt@med.uni-heidelberg.de" class="auth_mail" title="E-mail the corresponding author ; Uwe Kordesc ; kordes@uke.de" class="auth_mail" title="E-mail the corresponding author ; Gudrun Fleischhackr ; gudrun.fleischhack@uk-essen.de" class="auth_mail" title="E-mail the corresponding author ; Astrid Gnekowp ; astrid.gnekow@klinikum-augsburg.de" class="auth_mail" title="E-mail the corresponding author ; Stefan Rutkowskic ; s.rutkowski@uke.de" class="auth_mail" title="E-mail the corresponding author ; on behalf of the German Paediatric Brain Tumour Consortium (HIT-Network)
- 关键词：Childhood brain tumour ; Childhood cancer survivor ; Late effects ; Quality of survival ; Long-term care
- 刊名：European Journal of Paediatric Neurology
- 出版年：2015
- 出版时间：November 2015
- 年：2015
- 卷：19
- 期：6
- 页码：619-639
- 全文大小：1102 K
文摘
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For many childhood brain tumour survivors, survival means chronic disease.
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For CBTS, QoS assessment should include tumour-, treatment- and host-related factors.
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Many CBTSs' dilemma: treatment takes CNS tumour, but bates CNS function.
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Predictive markers of late effects are needed for individual treatment planning.
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Empowering survivors and stakeholders: a new mission in Paediatric Neurooncology.