Rare cancers—Rarity as a cost and value argument

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• 作者：J.-Matthias Graf von der Schulenburg ; Fré ; dé ; ric Pauer ; ^frp@cherh.de
• 关键词：Rare diseases ; Cancer ; Health care systems ; Cost
• 刊名：Journal of Cancer Policy
• 出版年：2017
• 出版时间：March 2017
• 年：2017
• 卷：11
• 期：Complete
• 页码：54-59
• 全文大小：450 K
• 卷排序：11

文摘

The overarching goal is to provide high-quality care and meet patients’ needs. New concepts for defining the prices for orphan drugs have to be developed. There are public health and economic challenges posed by rare diseases. A main task is the generation of evidence-based information about rare cancers.