Dying at life׳s beginning: Experiences of parents and health professionals in Switzerland when an ‿span style='font-style: italic'>in utero ‿diagnosis incompatible with life is made
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- 作者：Valerie Fleming ; RM ; B Div ; PhD ; flem@zhaw.ch" class="auth_mail" title="E-mail the corresponding author (Professor) ; Irina Iljuschin ; MA ilju@zhaw.ch" class="auth_mail" title="E-mail the corresponding author (Research Assistant) ; Jessica Pehlke-Milde ; RM ; Dr Rer Cur pehl@zhaw.ch" class="auth_mail" title="E-mail the corresponding author (Professor) ; Franziska Maurer ; RM Franziska.maurer@bluewin.ch" class="auth_mail" title="E-mail the corresponding author (Midwifery ; Perinatal Loss Consultant) ; Franziska Parpan ; lic. Phil. parp@zhaw.ch" class="auth_mail" title="E-mail the corresponding author (Research Fellow)
- 关键词：Fetal congenital malformation ; Thematic analysis ; Temporality ; Gaps
- 刊名：Midwifery
- 出版年：2016
- 出版时间：March 2016
- 年：2016
- 卷：34
- 期：Complete
- 页码：23-29
- 全文大小：340 K
文摘
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Parents felt pressured to decide whether or not to continue their pregnancies.
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Advice for the women was not always consistent.
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No special palliative care packages were offered.
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During the birth/death of the infant, care was always sensitive and appropriate.
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Following discharge from hospital no clear pathways of care were in place.