Study of Duchenne muscular dystrophy long-term survivors aged 40 years and older living in specialized institutions in Japan

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• 作者：Toshio Saito^a ; ^{saitot@toneyama.go.jp} ; Mitsuru Kawai^b ; En Kimura^c ; Katsuhisa Ogata^b ; Toshiaki Takahashi^d ; Michio Kobayashi^e ; Hiroto Takada^f ; Satoshi Kuru^g ; Takashi Mikata^h ; Tsuyoshi Matsumuraⁱ ; Naohiro Yonemoto^c ; Harutoshi Fujimuraⁱ ; Saburo Sakodaⁱ
• 关键词：Duchenne muscular dystrophy (DMD) ; Long-term survivor ; Conventional multidisciplinary care
• 刊名：Neuromuscular Disorders
• 出版年：2017
• 出版时间：February 2017
• 年：2017
• 卷：27
• 期：2
• 页码：107-114
• 全文大小：642 K
• 卷排序：27

文摘

In 2013, 55 patients with DMD aged older than 40 years were living in specialty muscular dystrophy wards in Japan. The present long-term survivors with DMD have received multidisciplinary intervention. Establishment of a worldwide care standard for adult male DMD patients with focus on quality of life is needed.