PatientsLikeMe® Online Epilepsy Community: Patient characteristics and predictors of poor health-related quality of life
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- 作者：Christine de la Logea ; Svetlana Dimovaa ; Knut Muellerb ; George Phillipsc ; Tracy L. Durgind ; Paul Wickse ; Simon Borghsf ; simon.borghs@ucb.com" class="auth_mail" title="E-mail the corresponding author
- 关键词：AED ; antiepileptic drug ; EQ-5D-3L ; EuroQoL 5-Dimensions Scale ; 3 Levels ; HADS ; Hospital Anxiety and Depression Scale ; GTC ; generalized tonic&ndash ; clonic ; HRQoL ; health-related quality of life ; NEWQOL ; Quality of Life in Newly Diagnosed Epilepsy Instrument ; PRO ; patient-reported outcome ; QOLIE-31/P ; Quality of Life in Epilepsy Inventory ; SD ; standard deviation
- 刊名：Epilepsy & Behavior
- 出版年：2016
- 出版时间：October 2016
- 年：2016
- 卷：63
- 期：Complete
- 页码：20-28
- 全文大小：1036 K
文摘
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The online PatientsLikeMe® forum allows patients with chronic diseases to interact.
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Real-world data collected via the PatientsLikeMe® platform can be used for research.
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QOLIE-31 predictors of poor HRQoL: GTC seizures, depression, and concentration and memory issues
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EQ-5D predictors of poor HRQoL: pain, depression, and comorbidities
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A holistic approach beyond seizure control should be considered when treating epilepsy.