- 作者：Ana Fonseca ; Ph.D. ; ana.fonseca77@gmail.com" class="auth_mail" title="E-mail the corresponding author ; Bá ; rbara Nazaré ; Ph.D. ; Maria Cristina Canavarro ; Ph.D.
- 关键词：Comprehension of information ; Diagnosis of congenital anomaly ; Parental adjustment ; Parents' information perceptions ; Satisfaction with information
- 刊名：Disability and Health Journal
- 出版年：2016
- 出版时间：January 2016
- 年：2016
- 卷：9
- 期：1
- 页码：150-156
- 全文大小：213 K
Objective/hypothesis
This study aimed to characterize both parents' perceptions of information concerning the CA and to investigate their role in maternal and paternal adjustment, one month after the disclosure and six months post-birth.
Methods
Thirty six couples whose infants were prenatally- or postnatally diagnosed with a CA participated in this prospective longitudinal study. During both assessment times (Time 1: one-month after the disclosure; Time 2: six-month post-birth), they answered the Brief Symptom Inventory-18, the EUROHIS-QOL-8, and other specific questions to assess parents' information perceptions.
Results
Mothers were more satisfied than fathers (p < .01) with the amount of information that was received at the disclosure, although mothers and fathers reported similar levels of comprehension of information. Six-month post-birth, both parents were similarly satisfied with the information that was received, although mothers sought significantly more (p < .01) additional information. Both maternal and paternal adjustment were significantly associated with maternal perceptions of information concerning CA.
Conclusion
Health professionals should recognize the important role of information concerning CA in parental adjustment and tailor their communication practices in order to promote parents' satisfaction and comprehension of the medical information. Despite the prominent influence of maternal perceptions on parental adjustment, both parents should be included in the communication process.