Parental quality of life in complex paediatric neurologic disorders of unknown aetiology
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- 作者：K.J.M. van Nimwegena ; Kirsten.vanNimwegen@radboudumc.nl" class="auth_mail" title="E-mail the corresponding author ; W. Kievita ; wietske.kievit@radboudumc.nl" class="auth_mail" title="E-mail the corresponding author ; G.J. van der Wiltb ; gertjan.vanderwil@radboudumc.nl" class="auth_mail" title="E-mail the corresponding author ; J.H. Schievingc ; jolanda.schieving@radboudumc.nl" class="auth_mail" title="E-mail the corresponding author ; M.A.A.P. Willemsenc ; michel.willemsen@radboudumc.nl" class="auth_mail" title="E-mail the corresponding author ; A.R.T. Dondersa ; rogier.donders@radboudumc.nl" class="auth_mail" title="E-mail the corresponding author ; C.M. Verhaakd ; Chris.verhaak@radboudumc.nl" class="auth_mail" title="E-mail the corresponding author ; J.P.C. Gruttersa ; janneke.grutters@radboudumc.nl" class="auth_mail" title="E-mail the corresponding author
- 关键词：Health-related quality of life ; Paediatric neurology ; SF-12 ; Physical quality of life ; Mental quality of life
- 刊名：European Journal of Paediatric Neurology
- 出版年：2016
- 出版时间：September 2016
- 年：2016
- 卷：20
- 期：5
- 页码：723-731
- 全文大小：523 K
文摘
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We examined parental HRQoL and factors related to it in complex paediatric neurologic disorders of unknown aetiology.
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Parental HRQoL in complex paediatric neurology is lowered compared to the general population.
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For fathers, both physical and mental HRQoL were affected, whereas mothers only showed diminished mental HRQoL.
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Factors that influenced parental HRQoL were patient age, patient HRQoL, and the parental level of trait worry.