Health-related quality of life and functional changes in DMD: A 12-month longitudinal cohort study
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- 作者：Sonia Messinaa ; b ; 1 ; Gian Luca Vitab ; 1 ; Maria Sframelib ; 1 ; Stefania Mondelloa ; Elena Mazzonec ; Adele D'Amicod ; Angela Berardinellie ; Matteo La Rosaa ; Claudio Brunof ; Maria Grazia Distefanoa ; Giovanni Baranellog ; Costanza Barcellonaa ; Marianna Scutiferoh ; Sonia Marcatoi ; Arianna Palmierii ; Luisa Politanoh ; Lucia Morandig ; Tiziana Monginij ; Elena Pegoraroi ; Maria Grazia D'Angelok ; Marika Panec ; Carmelo Rodolicoa ; Carlo Minettif ; Enrico Bertinid ; Giuseppe Vitaa ; b ; Eugenio Mercuric ; mercuri@rm.unicatt.it" class="auth_mail" title="E-mail the corresponding author
- 关键词：Duchenne muscular dystrophy ; Quality of life ; Outcome measures ; PedsQLTM
- 刊名：Neuromuscular Disorders
- 出版年：2016
- 出版时间：March 2016
- 年：2016
- 卷：26
- 期：3
- 页码：189-196
- 全文大小：474 K
文摘
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At baseline, the PedsQLTM inventories correlated with almost all the functional measures.
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There was a significant decrease between baseline and 12 months on PedsQLTM GCS.
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This decrement paralleled with the decrement in the functional outcome measures.
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PedsQLTM correlates with the level of impairment.
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This correlations were not confirmed when 12 month changes are considered.