Palliative care and its emerging role in Multiple System Atrophy and Progressive Supranuclear Palsy

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• 作者：Louise Wiblin^a ; ^{louise.wiblin@newcastle.ac.uk} ; Mark Lee^b ; ^{mark.lee@stft.nhs.uk} ; David Burn^c ; ^{david.burn@ncl.ac.uk}
• 关键词：Multiple System Atrophy ; MSA ; Progressive Supranuclear Palsy ; PSP ; Atypical Parkinsonism ; Palliative care ; Quality of life ; Trajectory of decline ; Advance care planning ; Caregivers
• 刊名：Parkinsonism & Related Disorders
• 出版年：2017
• 出版时间：January 2017
• 年：2017
• 卷：34
• 期：Complete
• 页码：7-14
• 全文大小：804 K
• 卷排序：34

文摘

Multiple System Atrophy and Progressive Supranuclear Palsy have profound symptom burdens. Palliative care is emerging as an adjunct to neurological input in neurodegenerative disorders. Basic palliative care can be provided by all clinicians with referral to specialist teams if needed. Palliative care need in MSA and PSP exists at a level equivalent to advanced cancer. Palliative care input has been found to improve quality of life in patients with MSA and PSP.