Functions of Dietitians Providing Nutrition Support to Patients with Inherited Metabolic Disorders

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• 作者：PHYLLIS B. ACOSTA ; ALAN S. RYAN
• 刊名：Journal of the American Dietetic Association
• 出版年：1997
• 出版时间：July 1997
• 年：1997
• 卷：97
• 期：7
• 页码：783-786
• 全文大小：378 K

文摘

This article examines functions of dietitians who provide nutrition services to patients with inherited metabolic disorders. A survey questionnaire was developed and pilot-tested in a sample of dietitians, revised, and mailed to all dietitians in the United States who treat patients with inherited metabolic disorders. One hundred forty-two usable questionnaires were returned. Descriptive statistics were used to calculate response frequency. The highest academic degree attained by 37 % of the dietitians was a bachelor's degree; 58 % had earned a master's degree and 5 % a doctorate. Dietitians provided nutrition services during diagnosis, critical illness, and long-term care. More than 90 % of the dietitians performed these functions: evaluated nutrition status; prepared, implemented, and evaluated the nutritional support plan; revised the nutrition support plan as needed; monitored dietary compliance; coordinated care with other agencies; developed materials and educated parents, caregivers, and patients about the nutrition support plan; and recorded information in the medical record. Without nutrition support, patients with inherited metabolic disorders may become mentally retarded, experience neurologic or metabolic crises, or die.