Parenting a Child with Asperger’s Syndrome: A Balancing Act

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• 作者：Carole A. Robinson ; Kaley York ; Alexandra Rothenberg…
• 关键词：Asperger’s syndrome ; Mothers-and fathers-experience ; Parenting ; Qualitative ; Interpretive description
• 刊名：Journal of Child and Family Studies
• 出版年：2015
• 出版时间：August 2015
• 年：2015
• 卷：24
• 期：8
• 页码：2310-2321
• 全文大小：416 KB
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• 作者单位：Carole A. Robinson (1)
  Kaley York (2)
  Alexandra Rothenberg (3)
  Laura J. L. Bissell (1)
  
  1. School of Nursing, University of British Columbia, Okanagan Campus, Kelowna, BC, V1V 1V7, Canada
  2. Interior Health Authority, Salmon Arm, BC, Canada
  3. School of Social Work, University of British Columbia, Okanagan Campus, Kelowna, BC, Canada
  
• 刊物类别：Behavioral Science
• 刊物主题：Psychology
  Child and School Psychology
  Social Sciences
  Sociology
  
• 出版者：Springer Netherlands
• ISSN：1573-2843

文摘

This study provides an interpretive description of parents-experiences of raising a child with Asperger’s syndrome (AS). Thirteen parents (eight mothers; five fathers) from eight families participated. Data were comprised of repeated semi-structured interviews with parents. The core concept of a “balancing act-was identified, and included two key themes: losing our footing and regaining our balance. Parents lost their footing when they experienced escalating challenges and lack of parenting success. They persevered over many years to find an answer to their children’s problems. The diagnosis of AS was a turning point that initiated the process of “regaining our balance,-enabling parents to better understand both their children and the condition. In this part of the process parents gradually experienced parenting success and rebuilt their confidence. The results of this study suggest that parenting a child with AS is a complex and evolving process in which parents struggle to find the right balance for themselves, their child with AS, and their family as a whole. Parenting encompassed joys and sorrows and an important part of finding balance included the ability to acknowledge both the positive qualities of their children and the challenges of managing the condition. Lack of professional recognition of AS, as well as blame and stigma, negatively affected these participants-ability to parent and points to the critical need for further education of teaching and health professionals.