Cross-sector collaborations in Aboriginal and Torres Strait Islander childhood disability: a systematic integrative review and theory-based synthesis
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- 作者：Anna Green (1)
Michelle DiGiacomo (1)
Tim Luckett (1)
Penelope Abbott (2)
Patricia Mary Davidson (3)
Joanne Delaney (4)
Patricia Delaney (4)
1. Center for Cardiovascular and Chronic Care ; Faculty of Health ; University of Technology ; Sydney ; PO Box 123 ; Broadway ; NSW ; 2007 ; Australia
2. University of Western Sydney ; Locked Bag 1797 ; Penrith ; NSW ; 1797 ; Australia
3. School of Nursing ; Johns Hopkins University ; 525 N. Wolfe Street ; Baltimore ; MD ; 21205 ; USA
4. Aboriginal Medical Service Western Sydney ; PO Box 3160 ; Mt Druitt ; NSW ; 2770 ; Australia - 关键词：Aboriginal and Torres Strait Islander ; Childhood ; Disability ; Collaboration ; Inter ; sector ; Intra ; sector
- 刊名：International Journal for Equity in Health
- 出版年：2014
- 出版时间：December 2014
- 年：2014
- 卷：13
- 期：1
- 全文大小：1,178 KB
- 参考文献：Cultural Respect Framework for Aboriginal and Torres Strait Islander Health, 2004鈥?009. Department of Health South Australia, South Australia
The health and welfare of Australia鈥檚 Aboriginal and Torres Strait Islander people: an overview. Australian Institute of Health and Welfare, Canberra
2010鈥?020 National Disability Strategy: An initiative of the Council of Australian Governments. Commonwealth of Australia, Canberra
1. Biddle, N, Yap, M, Gray, M (2013) CAEPR Indigenous Population Project 2011 Census Papers. Paper 6 Disability. Australian National University, Canberra
2. Emerson, E, Madden, R, Graham, H, Llewellyn, G, Hatton, C, Robertson, J (2011) The health of disabled people and the social determinants of health. Public Health 125: pp. 145-147 CrossRef
3. Grant, J, Parry, Y, Guerin, P (2013) An investigation of culturally competent terminology in healthcare policy finds ambiguity and lack of definition. Aust N Z J Public Health 37: pp. 250-256 CrossRef
4. Commission, AHR (2009) Inquiry into hearing health in Australia: Australian Human Rights Commission submission to the Senate Community Affairs Committee. Sydney, Australian Human Rights Commission
World Report On Disability. World Health Organization, Geneva
5. Ball, J (2009) Supporting young indigenous children's language development in Canada: A review of research on needs and promising practices. Can Modern Language Rev 66: pp. 19-47 CrossRef
6. Banks S, Miller D: Empowering indigenous families who have children with disabilities: An innovative outreach model. / Disabi Stud Q 2005, 25(2).
7. Cappiello, M, Gahagan, S (2009) Early child development and developmental delay in indigenous communities. Pediatr Clin N Am 56: pp. 1501-1517 CrossRef
8. Castleden, H (2002) The Silent North: A case study on deafness in a Dene community. Can J Nativ Educ 26: pp. 152-168
9. Sherwood, J (1993) The management of children with otitis media. Aboriginal Islander Health Wor J 17: pp. 15-17
10. Thorne, J (2003) Middle ear problems in Aboriginal school children cause developmental and educational concerns. Contemp Nurse 16: pp. 145-150
National Aboriginal and Torres Strait Islander Health Survey 2004鈥?5. Australian Bureau of Statistics, Canberra
Chronic Suppurative Otitis Media: Burden Of Illness And Management Options. World Health Organization, Geneva
11. Morris P, Leach A, Silberberg P, Mellon G, Wilson C, Hamilton E, Beissbarth J: Otitis media in young Aboriginal children from remote communities in northern and central Australia: A cross-sectional survey. / BMC Pediatrics 2005, 5(27).
12. Williams, C, Jacobs, A (2009) The impact of otitis media on cognitive and educational outcomes. Med J Aust 191: pp. S69-S72
13. Robinson, P, Hoskins, G, Page, S, Peckham, C (1997) A national program of Aboriginal and Torres Strait Islander Health Workers to reduce the incidence of otitis media and hearing loss in children. Aboriginal Isl Health WorkJ 21: pp. 27-29
14. Aldred, R, Forsingdal, S, Baker, R (2002) Working together to improve the health status and health outcomes for Indigenous children and their families living in urban settings: the speech pathologist's role. ACQuiring Knowl Speech Lang Hear 4: pp. 166-169
15. Pink, B, Allbon, P (2008) The Health And Welfare Of Australia's Aboriginal And Torres Strait Islander Peoples 2008. Australian Bureau of Statistics and the Australian Institute of Health and Welfare, Canberra
16. McDonald, J, Comino, E, Knight, J, Webster, V (2012) Developmental progress in urban Aboriginal infants: a cohort study. J Paediatr Child Health 48: pp. 114-121 CrossRef
17. McDonald, J, Webster, V, Knight, J, Comino, E (2014) The Gudaga Study: development in 3-year-old urban Aboriginal children. J Paediatr Child Health 50: pp. 100-106 CrossRef
Stronger Futures in the Northern Territory: Hearing Health Services 2012鈥?013. Australian Institute of Health and Welfare, Canberra
Hear Us: Inquiry Into Hearing Health In Australia. Parliament of Australia Senate, Canberra
18. Otitis media: helping to close the gap in Indigenous Australia. / Medicus (Nedlands, WA) 2013, 53(2):46鈥?/strong>47.
19. Bowes, J, Grace, R (2014) Review Of Early Childhood Parenting, Education And Health Intervention Programs For Indigenous Children And Families In Australia. Issues Paper No. 8 Produced For The Closing The Gap Clearinghouse. Australian Institute of Health and Welfare, Canberra
20. Novello, A, Degraw, C, Kleinman, D (1992) Healthy children ready to learn: an essential collaboration between health and education. Public Health Rep 107: pp. 3-15
21. Baum, F (2007) Cracking the nut of health equity: top down and bottom up pressure for action on the social determinants of health. Promot Educ 14: pp. 90-95 253823070140022002" target="_blank" title="It opens in new window">CrossRef
22. Hunt, J (2013) Engaging with Indigenous Australia鈥擡xploring The Conditions For Effective Relationships With Aboriginal And Torres Strait Islander Communities. Issues paper no. 5. Australian Institute of Health and Welfare and Australian Institute of Family Studies, Canberra and Melbourne
23. O'Neill, M, Kirov, E, Thomson, N (2004) A review of the literature on disability services for Aboriginal and Torres Strait Islander peoples. Austr Indigenous HealthBull 4: pp. 1-26
National Indigenous Reform Agreement (Closing the Gap). Commonwealth of Australia, Canberra
National Strategic Framework for Aboriginal and Torres Strait Islander Health 2003鈥?013, Australian Government Implementation Plan 2007鈥?013. Commonwealth of Australia, Canberra
Investing in the early years-a National Early Childhood Development Strategy. Council of Australian Governments, Canberra
Disability Support Services 2009鈥?0: Report On Services Provided Under The National Disability Agreement. In Disability series. Australian Institute of Health and Welfare, Canberra
24. Scholes, J (2010) Deadly Ears Speech Pathology: Working through partnerships to limit the impact of otitis media on the communication development of Aboriginal and Torres Strait Islander children. Talkabout 23: pp. 20-21
25. Nations, U (2006) The United Nations and Disabled Persons-The First Fifty Years. United Nations, New York
26. Kitto, S, Chesters, J, Grbich, C (2008) Quality in qualitative research: criteria for authors and assessors in the submission and assessment of qualitative research articles for the Medical Journal of Australia. Med J Aust 188: pp. 243-246
27. Elm, E, Altman, D, Egger, M, Pocock, S, G酶tzsche, P, Vandenbroucke, J (2007) The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) Statement: guidelines for reporting observational studies. Bull World Health Organ 85: pp. 867-872
28. Des Jarlais, D, Lyles, C, Crepaz, N (2004) Improving the reporting quality of nonrandomized evaluations of behavioral and public health interventions: the TREND statement. Am J Public Health 94: pp. 361-366 CrossRef
29. Pluye P, Robert E, Cargo M, Bartlett G, O鈥機athain A, Griffiths F, Boardman F, Gagnon MP, Rousseau MC: Proposal: A mixed methods appraisal tool for systematic mixed studies reviews [http://mixedmethodsappraisaltoolpublic.pbworks.com. Archived by WebCite庐 at http://www.webcitation.org/5tTRTc9yJ]
30. Shea B, Grimshaw J, Wells G, Boers M, Andersson N, Hamel C, Porter AC, Tugwell P, Moher D,Bouter LM: Development of AMSTAR: a measurement tool to assess the methodological quality of systematic reviews. / BMC Med Res Method 2007, 7(10).
31. Melnyck, B, Fineout-Overholt, E (2005) Evidence-Based Practice In Healthcare. Lippincott, Philadelphia
32. Popay, J, Roberts, H, Sowden, A, Petticrew, M, Arai, L, Rodgers, M, Britten, N, Roen, K, Duffy, S (2006) Guidance on The Conduct Of Narrative Synthesis In Systematic Reviews. A Product from the ESRC Methods Programme. Version 1.
33. Australian Institute of Health and Welfare: / Social and emotional wellbeing: development of a Children鈥檚 Headline Indicator. Cat. no. PHE 158. Canberra: Australian Institute of Health and Welfare; 2012.
34. Bronfenbrenner U: / The ecology of human development: experiments by nature and design. Cambridge, Mass.: Harvard University Press; 1979.
35. Westby, C (2013) Implementing recommendations of the World Report on Disability for indigenous populations. Int J Speech Language Pathol 15: pp. 96-100 CrossRef
36. Clarke, K, Denton, M (2013) Red Dirt Thinking on child wellbeing in Indigenous, rural and remote Australian communities: The SpICE Model "I just don't want my kid to struggle like I did at school". Austr J Indigenous Educ 42: pp. 136-144 CrossRef
37. Burns, J, Thomson, N (2013) Review Of Ear Health And Hearing Among Indigenous Australians. Australian Indigenous HealthInfoNet, Western Australia
38. McSwan, D, Ruddell, D, Searston, I (2001) Report: A Whole Community Approach to Otitis Media-reducing its incidence and effects. Rural Education, Research and Development Centre, James Cook University, Townsville
39. DiGiacomo M, Davidson PM, Abbott P, Delaney P, Dharmendra T, McGrath SJ, Delaney J, Vincent F: Childhood disability in Aboriginal and Torres Strait Islander peoples: A literature review. / Int J Equity Health 2013, 12(7).
Students with Disabilities: Aboriginal Students with Disabilities. Government of South Australia, South Australia
40. DiGiacomo M, Delaney P, Abbott P, Davidson PM, Delaney J, Vincent F: 'Doing the hard yards': carer and provider focus group perspectives of accessing Aboriginal childhood disability services. / BMC Health Serv Res 2013, 13(326).
Report on Key Learnings from the Committee Research Trip 11鈥?7 March 2012. Parliament of Western Australia, Perth
41. Consultants, ARTD (2008) Evaluation of the Aboriginal Otitis Media Screening Program: Final Report. New South Wales Health, Sydney
42. Ministerial Advisory Committee: Students with Disabilities: / Aboriginal Students with Disabilities: Otitis Media and Conductive Hearing Loss. South Australia: Government of South Australia; 2007.
43. Health, Q (2009) Deadly Ears, Deadly Kids, Deadly Communities: 2009鈥?013. Queensland Government, Queensland
44. Burrow, S, Galloway, A, Weissofner, N (2009) Review Of Educational And Other Approaches To Hearing Loss Among Indigenous People. Australian Indigenous HealthInfoNet, Western Australia
45. Kirkham, L, Wiertsema, S, Smith-Vaughan, H, Thornton, R, Marsh, R, Lehmann, D, Leach, A, Morris, P, Richmond, P (2010) Are you listening? The inaugural Australian Otitis Media (OMOZ) workshop - towards a better understanding of otitis media. Med J Aust 193: pp. 569-571
46. Gilroy J: The participation of Aboriginal people with a disability in disability services in New South Wales, Australia. / PhD thesis. University of Sydney; 2012.
47. Australian Indigenous EarInfoNet and InfoNetwork. / Aboriginal and Islander Health Worker Journal 2006, 30(3):20-21.
48. Purcal, C, Newton, BJ, Fisher, KR, Eastman, C, Mears, T (2013) School readiness Program For Aboriginal Children With Additional Needs: Working With Children, Families, Communities And Service Providers. Interim Evaluation Report. Social Policy Research Centre, University of New South Wales, Sydney
49. Raman, S, Reynolds, S, Khan, R (2011) Addressing the well-being of Aboriginal children in out-of-home care: Are we there yet?. J Paediatr Child Health 47: pp. 806-811 CrossRef
50. Burton, J (2012) Opening Doors Through Partnerships: Practical Approaches To Developing Genuine Partnerships That Address Aboriginal and Torres Strait Islander Community Needs April 2012. Secretariat of National Aboriginal and Islander Child Care, Victoria
51. Adams, K, Dixon, T, Guthrie, J (2004) Evaluation of the Gippsland Regional Indigenous Hearing Health Program - January to October 2002. Health Promot J Austr 15: pp. 205-210
52. Nelson, A, Allison, H (2004) A visiting occupational therapy service to Indigenous children in school: Results of a pilot project. Austr J Indigenous Educ 33: pp. 55-60
53. Nelson, A, Allison, H (2007) Relationships: the key to effective occupational therapy practice with urban Australian Indigenous children. Occup Ther Int 14: pp. 57-70 CrossRef
54. McSwan, D, Clinch, E, Store, R (2001) Otitis media, learning and community. Educ Rural Aust 11: pp. 27-32
55. Simmons, K, Rotumah, V, Cookson, M, Grigg, D (2012) Child Hearing Health Coordinators tackle ear and hearing health in the NT. Chronicle 23: pp. 22-23
56. Elliott, G, Smith, AC, Bensink, ME, Brown, C, Stewart, C, Perry, C, Scuffham, P (2010) The feasibility of a Community-Based Mobile Telehealth Screening Service for Aboriginal and Torres Strait Islander Children in Australia. Telemed e-Health 16: pp. 950-956 CrossRef
57. Higgins, J, Beecher, S (2010) The Secretariat of National Aboriginal and Islander Child Care (SNAICC) Early Days Project on Autism Spectrum Disorders August 2010. Secretariat of National Aboriginal and Islander Child Care, Victoria
58. Davidson, B, Hill, AE, Nelson, A (2013) Responding to the World Report on Disability in Australia: Lessons from collaboration in an urban Aboriginal and Torres Strait Islander school. Int J Speech Lang Pathol 15: pp. 69-74 CrossRef
Improving Service Delivery To Aboriginal People With A Disability: A Review Of The Implementation of ADHC's Aboriginal Policy Framework and Aboriginal Consultation Strategy. New South Wales Ombudsman, Sydney
59. Smith, A, Armfield, N, Wu, W, Brown, C, Perry, C (2012) A mobile telemedicine-enabled ear screening service for Indigenous children in Queensland: activity and outcomes in the first three years. J Telemed Telecare 18: pp. 485-489 258/jtt.2012.GTH114" target="_blank" title="It opens in new window">CrossRef
60. Llewellyn, G, Thompson, K, Fante, M (2002) Inclusion in early childhood services: Ongoing challenges. Austr J Early Child 27: pp. 18-23
61. Huxham, C, Vangen, S (2005) Managing To Collaborate: The Theory And Practice Of Collaborative Advantage. Routledge, United States
Creating the NACCHO Cultural Safety Training Standards and Assessment Process: A background paper. NACCHO, Canberra
62. Betancourt, J, Green, A, Carrillo, J, Ananeh-Firempong, O (2003) Defining cultural competence: a practical framework for addressing racial/ethnic disparities in health and health care. Public Health Rep 118: pp. 293-302 253-4" target="_blank" title="It opens in new window">CrossRef
Aboriginal and Torres Strait Islander people with disability: Wellbeing, participation and support. Australian Institute of Health and Welfare, Canberra
63. Burton, J (2012) Coming Together: The Journey Towards Effective Integrated Services for Aboriginal and Torres Strait Islander Children And Families. Secretariat of National Aboriginal and Islander Child Care, Victoria
64. Allen, M, Allen, J, Hogarth, S, Marmot, M (2013) Working For Health Equity: The Role Of Health Professionals. UCL Institute of Health Equity, London
65. Hunter, D, Perkins, N, Bambra, C, Marks, L, Hopkins, T, Blackman, T (2010) Partnership Working And The Implications For Governance: Issues Affecting Public Health Partnerships. National Institute for Health Research Service Delivery and Organisation programme, United Kingdom - 刊物主题：Public Health; Development Economics; Quality of Life Research; Social Policy;
- 出版者：BioMed Central
- ISSN：1475-9276
文摘
Introduction Aboriginal and Torres Strait Islander children in Australia experience a higher prevalence of disability and socio-economic disadvantage than other Australian children. Early intervention is vital for improved health outcomes, but complex and fragmented service provision impedes access. There have been international and national policy shifts towards inter-sector collaborative responses to disability, but more needs to be known about how collaboration works in practice. Methods A systematic integrative literature review using a narrative synthesis of peer-reviewed and grey literature was undertaken to describe components of inter- and intra-sector collaborations among services to Aboriginal and Torres Strait Islander children with a disability and their families. The findings were synthesized using the conceptual model of the ecological framework. Results Thirteen articles published in a peer-reviewed journal and 18 articles from the grey literature met inclusion criteria. Important factors in inter- and intra-sector collaborations identified included: structure of government departments and agencies, and policies at the macro- (government) system level; communication, financial and human resources, and service delivery setting at the exo- (organizational) system level; and relationships and inter- and intra-professional learning at the meso- (provider) system level. Conclusions The policy shift towards inter-sector collaborative approaches represents an opportunity for the health, education and social service sectors and their providers to work collaboratively in innovative ways to improve service access for Aboriginal and Torres Strait Islander children with a disability and their families. The findings of this review depict a national snapshot of collaboration, but as each community is unique, further research into collaboration within local contexts is required to ensure collaborative solutions to improve service access are responsive to local needs and sustainable.