Health-related Internet use by lupus patients in southern Spain
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- 作者：José-Luis Callejas-Rubio (1)
Raquel Ríos-Fernández (1)
Ana-Celia Barnosi-Marín (2)
Francisco-José García-Hernández (3)
José-Antonio Vargas-Hitos (4)
María-Teresa Camps-García (5)
José-Antonio González-Nieto (6)
Julio Sánchez-Román (3)
Juan Jiménez-Alonso (4)
Enrique de Ramón Garrido (5)
Norberto Otego-Centeno (1) - 关键词：Internet ; Lupus ; Website
- 刊名：Clinical Rheumatology
- 出版年：2014
- 出版时间：April 2014
- 年：2014
- 卷：33
- 期：4
- 页码：567-573
- 全文大小：153 KB
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Raquel Ríos-Fernández (1)
Ana-Celia Barnosi-Marín (2)
Francisco-José García-Hernández (3)
José-Antonio Vargas-Hitos (4)
María-Teresa Camps-García (5)
José-Antonio González-Nieto (6)
Julio Sánchez-Román (3)
Juan Jiménez-Alonso (4)
Enrique de Ramón Garrido (5)
Norberto Otego-Centeno (1)
1. Systemic Autoimmune Diseases Unit, Hospital San Cecilio, Avda Dr Olóriz 16, 18012, Granada, Spain
2. Systemic Autoimmune Diseases Unit, Hospital Torrecárdenas, Almería, Spain
3. Collagenosis and Pulmonary Hypertension Unit, Hospital Virgen del Rocío, Sevilla, Spain
4. Systemic Autoimmune Diseases Unit, Hospital Virgen de las Nieves, Granada, Spain
5. Systemic Autoimmune Diseases Unit, Hospital Carlos Haya, Málaga, Spain
6. Systemic Autoimmune Diseases Unit, Hospital Juan Ramón Jiménez, Huelva, Spain - ISSN：1434-9949
文摘
Internet has become a widely used tool by patients seeking information on different diseases. The information regarding lupus patients-Internet use is scarce. This study aims to explore the attitudes and practices of lupus patients in southern Spain, regarding Internet use to find health-related information. A survey was carried out including 150 patients from six Andalusian Hospitals. To search for information, 67.3?% of the patients used Internet. The proportion of female Internet users was higher (69.3 vs 46.2?%), particularly those belonging to a patients-association (81.8 vs 32.7?%), and are regular users of Internet (80.2 vs 44.4?%); 37.5?% thought the information found in the Internet was of little use or not useful at all, and 58?% of the respondents stated that the information found caused them concern while for 27?%, it was a relief. Most patients preferred the information given by their physicians (63.6?%); 33.9?% considered that the information from both sources was complementary, and 2.5?% preferred the information obtained from the Internet. A percentage of 85.3 of the patients would like their physicians to provide them with information on high-quality sites regarding their illness. Lupus patients make frequent use of the Internet to look for information on their disease. Considering this, and because better-informed patients follow more precisely the indications given by the physician, medical staff should collaborate in the development of high-quality sites for the patient to have additional sources of information.