Caregiving on the Hopi Reservation: Findings from the 2012 Hopi Survey of Cancer and Chronic Disease

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• 作者：Felina M. Cordova ; Robin B. Harris…
• 关键词：Caregiving ; Caregiver ; American Indian ; Reservation ; Health disparities ; Cancer screening ; Cancer
• 刊名：Journal of Community Health
• 出版年：2016
• 出版时间：December 2016
• 年：2016
• 卷：41
• 期：6
• 页码：1177-1186
• 全文大小：378 KB
• 刊物类别：Medicine
• 刊物主题：Medicine & Public Health
  Public Health
  Health Promotion and Disease Prevention
  Ethics
  
• 出版者：Springer Netherlands
• ISSN：1573-3610
• 卷排序：41

文摘

A family caregiver provides unpaid assistance to a family member/friend with a chronic disease, illness or disability. The caregiving process can affect a caregiver’s quality of life by reducing time for themselves, for other family members and for work. The 2000 Behavioral Risk Factor Surveillance Survey estimates that 16 % of adult American Indians (AIs) are caregivers. A 2012 survey collected knowledge and personal experience data from a random sample of Hopi men and women (248 men and 252 women). Self-identified caregivers answered questions on time spent caregiving, caregiver difficulties and services requested. Approximately 20 % of the 500 Hopi participants self-identified as caregivers (N = 98), with 56 % female. Caregivers in contrast to non-caregivers had a lower percentage of ever having a mammogram (86, 89 %), a higher percentage of ever having had a Pap smear test (89.1, 85.6 %), a prostate specific antigen test (35, 30.6 %) and ever having had a colonoscopy (51.2, 44 %). Almost 21 % of caregivers reported difficulty with stress and 49 % reported it as their greatest caregiver difficulty. More males (28.6 %) identified financial burden as the greatest difficulty than females (p = 0.01). Training on patient care was the service that caregivers would like to receive most (18.2 %). The percentage of Hopi’s providing caregiving was similar to national averages, although among men, was somewhat higher than national data (44 vs. 34 %). Stress was identified as a difficulty, similar to national studies.