Distressed family caregivers of lung cancer patients: an examination of psychosocial and practical challenges

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• 作者：Catherine E. Mosher (1) (2)
  Heather A. Jaynes (3)
  Nasser Hanna (4)
  Jamie S. Ostroff (1)
  
• 关键词：Family caregiver ; Lung cancer ; Psychological distress ; Health ; Quality of life
• 刊名：Supportive Care in Cancer
• 出版年：2013
• 出版时间：February 2013
• 年：2013
• 卷：21
• 期：2
• 页码：431-437
• 全文大小：170KB
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• 作者单位：Catherine E. Mosher (1) (2)
  Heather A. Jaynes (3)
  Nasser Hanna (4)
  Jamie S. Ostroff (1)
  
  1. Department of Psychiatry and Behavioral Sciences, Memorial Sloan-Kettering Cancer Center, 641 Lexington Avenue, 7th Floor, New York, NY, 10022, USA
  2. Department of Psychology, Indiana University–Purdue University Indianapolis, 402 North Blackford Street, LD 124, Indianapolis, IN, 46202, USA
  3. Department of Pharmacy Practice, Purdue University, 575 Stadium Mall Drive, West Lafayette, IN, 47907, USA
  4. Department of Medicine, Indiana University School of Medicine, 535 Barnhill Drive, Room 473, Indianapolis, IN, 46202, USA
  
• ISSN：1433-7339

文摘

Purpose Lung cancer and its treatment impose many demands on family caregivers, which may increase their risk for distress. However, little research has documented aspects of the caregiving experience that are especially challenging for distressed caregivers of lung cancer patients. This study aimed to explore caregivers-key challenges in coping with their family member’s lung cancer. Methods Single, semi-structured qualitative interviews were conducted with 21 distressed family caregivers of lung cancer patients. Results Caregivers described three key challenges in coping with their family member’s lung cancer. The most common challenge, identified by 38?% of caregivers, was a profound sense of uncertainty regarding the future as they attempted to understand the patient’s prognosis and potential for functional decline. Another key challenge, identified by 33?% of caregivers, involved time-consuming efforts to manage the patient’s emotional reactions to the illness. Other caregivers (14?%) characterized practical tasks, such as coordinating the patient’s medical care, as their greatest challenge. Conclusions Results suggest that clinical efforts are needed to assist distressed caregivers in providing practical and emotional support to the patient and attending to their own emotional needs.