Community-Based Partnership to Identify Keys to Biospecimen Research Participation

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• 作者：Deborah O. Erwin (1)
  Kirsten Moysich (1)
  Marc T. Kiviniemi (2)
  Frances G. Saad-Harfouche (1)
  Warren Davis (1)
  Nikia Clark-Hargrave (1)
  Gregory L. Ciupak (1)
  Christine B. Ambrosone (1)
  Charles Walker (3)
  
• 关键词：Community ; based participatory research ; Biospecimen banking ; African Americans
• 刊名：Journal of Cancer Education
• 出版年：2013
• 出版时间：March 2013
• 年：2013
• 卷：28
• 期：1
• 页码：43-51
• 全文大小：169KB
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• 作者单位：Deborah O. Erwin (1)
  Kirsten Moysich (1)
  Marc T. Kiviniemi (2)
  Frances G. Saad-Harfouche (1)
  Warren Davis (1)
  Nikia Clark-Hargrave (1)
  Gregory L. Ciupak (1)
  Christine B. Ambrosone (1)
  Charles Walker (3)
  
  1. Roswell Park Cancer Institute, Cancer Prevention and Population Sciences, Elm and Carlton Streets, Buffalo, NY, 14263, USA
  2. State University of New York at Buffalo, School of Public Health and Health Professions, 314 Kimball Tower, 3435 Main Street, Buffalo, NY, 14214, USA
  3. Niagara Falls Memorial Medical Center, 501 Tenth Street, Niagara Falls, NY, 14301, USA
  
• ISSN：1543-0154

文摘

Reported barriers to participation in biospecimen banking include unwillingness to undergo blood-draw procedures and concerns about confidentiality breaches, privacy, and discrimination. The study identified key factors and influential perspectives to address these barriers and inform methods to improve recruitment and research participation among racially diverse community. A mixed-methods, community-based participatory research orientation was used to collect formative findings to develop a pilot intervention. Methods included nine key informant interviews, three focus groups (n--6), and 64 community surveys. Findings showed: (1) increased concern of exploitation by pharmaceutical company sponsor; (2) varied perceptions about monetary compensation for research participation; and (3) willingness to participate in a biospecimen banking study by more than 30% of the people in the community survey. Research participation and biospecimen donation may be influenced by who is sponsoring a study. Monetary incentives for study participation may be more important for African American than White participants.