Protocol: developing a conceptual framework of patient mediated knowledge translation, systematic review using a realist approach

详细信息    查看全文

• 作者：Anna R Gagliardi (1)
  France Légaré (2)
  Melissa C Brouwers (3)
  Fiona Webster (4)
  David Wiljer (5)
  Elizabeth Badley (6)
  Sharon Straus (7)
  
• 刊名：Implementation Science
• 出版年：2011
• 出版时间：December 2011
• 年：2011
• 卷：6
• 期：1
• 全文大小：281KB
• 参考文献：1. Graham ID, Logan J, Harrison MB, Straus SE, Tetroe J, Caswell W, Robinson N: Lost in knowledge translation: time for a map? / J Contin Educ Health Prof 2006, 26:13-4. CrossRef
  2. Hobbs JL: A dimensional analysis of patient-centered care. / Nurs Res 2009, 58:56-2. CrossRef
  3. Street RL, Makoul G, Arora NK, Epstein RM: How does communication heal? Pathways linking clinician-patient communication to health outcomes. / Patient Educ Couns 2009, 74:295-01. CrossRef
  4. Frosch DL, Legare F, Mangione CM: Using decision aids in community-based primary care: a theory driven evaluation with ethnically diverse patients. / Patient Educ Couns 2008, 7:490-96. CrossRef
  5. Tugwell PS, Wilson AJ, Brooks PM, Driedger SM, Gallois C, O'Connor AM, Qualman A, Santesso N, Wale J, Wells GA: Attributes and skills of an effective musculoskeletal consumer. / J Rheumatol 2005, 32:2257-261.
  6. Abraham C, Michie S: A taxonomy of behavior change techniques used in interventions. / Health Psychol 2008, 27:379-87. CrossRef
  7. Grimshaw JM, Thomas RE, MacLennan G, Fraser C, Ramsay CR, Vale L, Whitty P, Eccles MP, Matowe L, Shirran L, Wensing M, Dijkstra R, Donaldson C: Effectiveness and efficiency of guideline dissemination and implementation strategies. / Health Technol Assess 2004, 8:1-2.
  8. Fautrel B, Pham T, Gossec L, Combe B, Flipo RM, Goupille P, Le Lo?t X, Puéchal X, Wendling D, Schaeverbeke T, Sibilia J, Sany J, Dougados M: Role and modalities of information and education in the management of patients with rheumatoid arthritis; development of recommendations for clinical practice based on published evidence and expert opinion. / Joint Bone Spine 2005, 72:163-70. CrossRef
  9. Abelson J, Gauvin FP: Engaging citizens: One route to health care accountability. In / Health Care Accountability Papers No. 2. Canadian Policy Research Networks Inc; 2004.
  10. Farrell C: / Patient and public involvement in health: The evidence for policy implementation. United Kingdom Department of Health; 2004.
  11. Gerteis M, Edgman-Levitan S, Daley J, Delbanco TL: / Medicine and health from the patient's perspective. IN Through the Patient's Eyes. Understanding and promoting patient-centered care. San Francisco: Jossey-Bass Publishers; 1993.
  12. Haynes RB, Ackloo E, Sahota N, McDonald HP, Yao X: Interventions for enhancing medication adherence. / Cochrane Database Syst Rev 2008, 2:CD000011.
  13. Pawson R, Greenhalgh T, Harvey G, Walshe K: Realist review - a new method of systematic review designed for complex policy interventions. / J Health Serv Res Policy 2005,10(Suppl 1):21-4. CrossRef
  14. Greenhalgh T, Kristjansson E, Robinson V: Realist review to understand the efficacy of school feeding programmes. / Br Med J 2007, 335:858-61. CrossRef
  15. Koehn CL, Esdaile JM: Patient education and self-management of musculoskeletal diseases. / Best Pract Res Clin Rheumatol 2008, 22:395-05. CrossRef
  16. Hubbard G, Kidd L, Donaghy E, McDonald C, Kearney N: A review of literature about involving people affected by cancer in research, policy and planning and practice. / Patient Educ Couns 2007, 65:21-3. CrossRef
  17. Warsi A, Wang PS, LaValley MP, Avorn J, Solomon DH: Self-management education programs in chronic disease. / Arch Intern Med 2004, 164:1641-649. CrossRef
  18. Agency for Healthcare Research and Quality. Systems to rate the strength of scientific evidence. Evidence Report/Technology Assessment Number 47, United States Department of Health and Human Services, 2002 [http://www.ahrq.gov]
  19. Kelley K, Clark B, Brown V, Sitzia J: Good practice in the conduct and reporting of survey research. / Int J Qual Health Care 2003, 15:261-66. CrossRef
  20. Tong A, Sainsbury P, Craig J: Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. / Int J Qual Health Care 2007, 19:349-57. CrossRef
  21. Mays N, Pope C, Popay J: Systematically reviewing qualitative and quantitative evidence to inform management and policy-making in the health field. / J Health Serv Res Policy 2005,10(Suppl 1):6-0. CrossRef
  
• 作者单位：Anna R Gagliardi (1)
  France Légaré (2)
  Melissa C Brouwers (3)
  Fiona Webster (4)
  David Wiljer (5)
  Elizabeth Badley (6)
  Sharon Straus (7)
  
  1. Departments of Health Policy, Management and Evaluation, University of Toronto, Toronto, Canada
  2. Department of Family Medicine, Université de Laval Centre Hospitalier, Universitaire de Québec, Québec, Canada
  3. Department of Oncology; Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, Canada
  4. Holland Orthopaedic & Arthritic Centre, Sunnybrook Health Sciences Centre, Toronto, Canada
  5. Department of Radiation Oncology, University Health Network, Faculty of Medicine University of Toronto, Toronto, Canada
  6. Department of Health Care and Outcomes Research and Epidemiology, University Health Network, Toronto, Canada
  7. Departments of Medicine, University of Toronto, Toronto, Canada
  

文摘

Background Patient involvement in healthcare represents the means by which to achieve a healthcare system that is responsive to patient needs and values. Characterization and evaluation of strategies for involving patients in their healthcare may benefit from a knowledge translation (KT) approach. The purpose of this knowledge synthesis is to develop a conceptual framework for patient-mediated KT interventions. Methods A preliminary conceptual framework for patient-mediated KT interventions was compiled to describe intended purpose, recipients, delivery context, intervention, and outcomes. A realist review will be conducted in consultation with stakeholders from the arthritis and cancer fields to explore how these interventions work, for whom, and in what contexts. To identify patient-mediated KT interventions in these fields, we will search MEDLINE, the Cochrane Library, and EMBASE from 1995 to 2010; scan references of all eligible studies; and examine five years of tables of contents for journals likely to publish quantitative or qualitative studies that focus on developing, implementing, or evaluating patient-mediated KT interventions. Screening and data collection will be performed independently by two individuals. Conclusions The conceptual framework of patient-mediated KT options and outcomes could be used by healthcare providers, managers, educationalists, patient advocates, and policy makers to guide program planning, service delivery, and quality improvement and by us and other researchers to evaluate existing interventions or develop new interventions. By raising awareness of options for involving patients in improving their own care, outcomes based on using a KT approach may lead to greater patient-centred care delivery and improved healthcare outcomes.