Patient and clinician views on the quality of foot health care for rheumatoid arthritis outpatients: a mixed methods service evaluation
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  • 作者:Savia de Souza ; Ruth Williams ; Heidi Lempp
  • 关键词:Clinicians ; Foot care ; Foot health ; Mixed methods ; Patients ; Podiatry ; Rheumatoid arthritis ; Service evaluation
  • 刊名:Journal of Foot and Ankle Research
  • 出版年:2016
  • 出版时间:December 2016
  • 年:2016
  • 卷:9
  • 期:1
  • 全文大小:770 KB
  • 参考文献:1.Brasington RD. Clinical features of rheumatoid arthritis. In: Hochberg MC, Silman AJ, Smolen JS, editors. Rheumatology. 5th ed. Philadephia: Mosby-Elsevier; 2011. p. 829–38.CrossRef
    2.Dixey J, Solymossy C, Young A. Is it possible to predict radiological damage in early rheumatoid arthritis (RA)? A report on the occurrence, progression, and prognostic factors of radiological erosions over the first 3 years in 866 patients from the Early RA Study (ERAS). J Rheumatol Suppl. 2004;69:48–54.PubMed
    3.van der Leeden M, Steultjens MP, Ursum J, Dahmen R, Roorda LD, Schaardenburg DV, et al. Prevalence and course of forefoot impairments and walking disability in the first eight years of rheumatoid arthritis. Arthritis Rheum. 2008;59:1596–602.CrossRef PubMed
    4.Belt EA, Kaarela K, Lehto MU. Destruction and arthroplasties of the metatarsophalangeal joints in seropositive rheumatoid arthritis. A 20-year follow-up study. Scand J Rheumatol. 1998;27:194–6.CrossRef PubMed
    5.Jahss MH. Foot and ankle pain resulting from rheumatic conditions. Curr Opin Rheumatol. 1992;4:233–40.CrossRef PubMed
    6.Michelson J, Easley M, Wigley FM, Hellmann D. Foot and ankle problems in rheumatoid arthritis. Foot Ankle Int. 1994;15:608–13.CrossRef PubMed
    7.Sokka T, Kankainen A, Hannonen P. Scores for functional disability in patients with rheumatoid arthritis are correlated at higher levels with pain scores than with radiographic scores. Arthritis Rheum. 2000;43:386–9.CrossRef PubMed
    8.Rupp I, Boshuizen HC, Dinant HJ, Jacobi CE, van den Bos GA. Disability and health-related quality of life among patients with rheumatoid arthritis: association with radiographic joint damage, disease activity, pain, and depressive symptoms. Scand J Rheumatol. 2006;35:175–81.CrossRef PubMed
    9.Otter SJ, Lucas K, Springett K, Moore A, Davies K, Cheek L, et al. Foot pain in rheumatoid arthritis prevalence, risk factors and management: an epidemiological study. Clin Rheumatol. 2010;29:255–71.CrossRef PubMed
    10.Otter SJ, Lucas K, Springett K, Moore A, Davies K, Young A, et al. Comparison of foot pain and foot care among rheumatoid arthritis patients taking and not taking anti-TNFα therapy: an epidemiological study. Rheumatol Int. 2011;31:1515–9.CrossRef PubMed
    11.van der Leeden M, Steultjens MP, van Schaardenburg D, Dekker J. Forefoot disease activity in rheumatoid arthritis patients in remission: results of a cohort study. Arthritis Res Ther. 2010;12:1–4.
    12.Woodburn J, Barker S, Helliwell PS. A randomized controlled trial of foot orthoses in rheumatoid arthritis. J Rheumatol. 2002;29:377–83.
    13.Goodacre LJ, Candy FJ. ‘If I didn’t have RA I wouldn’t give them house room’: the relationship between RA, footwear and clothing choices. Rheumatology. 2011;50:513–7.CrossRef PubMed
    14.Naidoo S, Anderson S, Mills J, Parsons S, Breeden S, Bevan E, et al. “I could cry, the amount of shoes I can’t get into”: A qualitative exploration of the factors that influence retail footwear selection in women with rheumatoid arthritis. J Foot Ankle Res. 2011;4:21.CrossRef PubMed PubMedCentral
    15.de Souza S, Lempp H. Patient perspectives on footwear in rheumatoid arthritis – a patient-led qualitative study. Ann Rheum Dis. 2015;74 Suppl 2:1364.CrossRef
    16.Firth J, Hale C, Helliwell P, Hill J, Nelson EA. The prevalence of foot ulceration in patients with rheumatoid arthritis. Arthritis Rheum. 2008;59:200–5.CrossRef PubMed
    17.Otter SJ, Lucas K, Springett K, Moore A, Davies K, Young A, et al. Identifying patient-reported outcomes in rheumatoid arthritis: the impact of foot symptoms on self-perceived quality of life. Musculoskeletal Care. 2012;10:65–75.CrossRef PubMed
    18.Podiatry Rheumatic Care Association. Standards of care for people with musculoskeletal foot health problems. 2008. http://​www.​prcassoc.​org.​uk/​standards-project . Accessed 05 Oct 2015.
    19.National Institute for Health and Care Excellence. Clinical Guideline 79, Rheumatoid arthritis: the management of rheumatoid arthritis in adults. 2009. http://​www.​nice.​org.​uk/​guidance/​cg79 . Accessed 29 Dec 2015.
    20.Redmond AC, Waxman R, Helliwell PS. Provision of foot health services in rheumatology in the UK. Rheumatology. 2006;45:571–6.CrossRef PubMed
    21.Farrow SJ, Khoshaba B, Scott DL, Choy EHS. Foot involvement, disease activity and disability in rheumatoid arthritis. Rheumatology. 2004;43:140.
    22.Landewé R, van der Heijde D, van der Linden S, Boers M. Twenty-eight-joint counts invalidate the DAS28 remission definition owing to the omission of the lower extremity joints: a comparison with the original DAS remission. Ann Rheum Dis. 2006;65:637–41.CrossRef PubMed PubMedCentral
    23.Williams AE, Graham AS. ‘My feet: visible, but ignored’. A qualitative study of foot care for people with rheumatoid arthritis. Clin Rehabil. 2012;26:952–9.CrossRef PubMed
    24.Hendry G, Turner D, Lorgelly PK, Woodburn J. Room for improvement: patient, parent, and practitioners’ perceptions of foot problems and foot care in juvenile idiopathic arthritis. Arch Phys Med Rehabil. 2012;93:2062–7.CrossRef PubMed
    25.Morgan DL. The focus group guide book. In: Morgan DL, Krueger RA, editors. Focus group kit, vol. 1. London: Sage Publications; 1998.
    26.Blake A, Mandy PJ, Stew G. Factors influencing the patient with rheumatoid arthritis in their decision to seek podiatry. Musculoskeletal Care. 2013;11:218–28.CrossRef PubMed
    27.Graham AS, Hammond A, Walmsley S, Williams AE. Foot health education for people with rheumatoid arthritis - some patient perspectives. J Foot Ankle Res. 2012;5:23.CrossRef PubMed PubMedCentral
    28.Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77–101.CrossRef
    29.Boyatzis RE. Transforming qualitative information: thematic analysis and code development. London: Sage Publications; 1998.
    30.Seale C. Using numbers. In: The quality of qualitative research. London: Sage Publications; 1999. p. 119–39.
    31.Seale C. Accounting for contradiction. In: The quality of qualitative research. London: Sage Publications; 1999. p. 73–86.
    32.Popham WJ. Competency verification in the health professions via limited focus measurement. Eval Health Prof. 1978;1:101–9.CrossRef PubMed
    33.Graham AS, Williams AE. Foot health education for people with rheumatoid arthritis:’…. A game of chance…’ – A survey of patients’ experiences. Musculoskeletal Care. 2015;doi: 10.​1002/​msc.​1111 .
    34.Graham AS, Hammond A, Williams AE. Foot health education for people with rheumatoid arthritis – the practitioner’s perspective. J Foot Ankle Res. 2012;5:2.CrossRef PubMed PubMedCentral
    35.Arthritis Research UK. Feet, footwear and arthritis. 2011. http://​www.​arthritisresearc​huk.​org/​shop/​products/​publications/​patient-information/​conditions/​feet-footwear-and-arthritis.​aspx . Accessed 08 Dec 2015.
    36.National Rheumatoid Arthritis Society. Our information on foot health. 2015. http://​www.​nras.​org.​uk/​our-articles-on-foot-health . Accessed 08 Dec 2015.
    37.Wechalekar MD, Lester S, Proudman SM, Cleland LG, Whittle SL, Rischmueller M, et al. Active foot synovitis in patients with rheumatoid arthritis: applying clinical criteria for disease activity and remission may result in underestimation of foot joint involvement. Arthritis Rheum. 2012;64:1316–22.CrossRef PubMed
    38.Scott IC, Scott DL. Joint counts in inflammatory arthritis. Clin Exp Rheumatol. 2014;32 Suppl 85:S7–12.
    39.Coates LC, FitzGerald O, Gladman DD, McHugh N, Mease P, Strand V, et al. Reduced joint counts misclassify patients with oligoarticular psoriatic arthritis and miss significant numbers of patients with active disease. Arthritis Rheum. 2013;65:1504–9.CrossRef PubMed
    40.Grunke M, Witt MN, Ronneberger M, Schnez A, Laubender RP, Engelbrecht M, et al. Use of the 28-joint count yields significantly higher concordance between different examiners than the 66/68-joint count. J Rheumatol. 2012;39:1334–40.CrossRef PubMed
    41.Helliwell P, Reay N, Gilworth G, Redmond A, Slade A, Tennant A, et al. Development of a foot impact scale for rheumatoid arthritis. Arthritis Rheum. 2005;53:418–22.CrossRef PubMed
    42.Walmsley S, Ravey M, Graham A, Teh LS, Williams AE. Development of a patient-reported outcome measure for the foot affected by rheumatoid arthritis. J Clin Epidemiol. 2012;65:413–22.CrossRef PubMed
    43.Woodburn J, Helliwell PS. Foot problems in rheumatology [editorial]. Br J Rheumatol. 1997;36:932–3.CrossRef PubMed
    44.Helliwell PS. Lessons to be learned: review of a multidisciplinary foot clinic in rheumatology. Rheumatology. 2003;42:1426–7.CrossRef PubMed
    45.Steward K, Land M. Perceptions of patients and professionals on rheumatoid arthritis care. A consultancy report by the King’s Fund for the Rheumatology Futures Group. London: The King’s Fund; 2009.
    46.Kerr M, Rayman G, Jeffcoate WJ. Cost of diabetic foot disease to the National Health Service in England. Diabet Med. 2014;31:1498–504.CrossRef PubMed
    47.Cook JV, Dickinson HO, Eccles MP. Response rates in postal surveys of healthcare professionals between 1996 and 2005: an observational study. BMC Health Serv Res. 2009;9:160.CrossRef PubMed PubMedCentral
    48.Hassan E. Recall bias can be a threat to retrospective and prospective research designs. IJE. 2005;3(2). http://​ispub.​com/​IJE/​3/​2/​13060 . Accessed 19 Nov 2015.
    49.Austin Research. Avoiding response bias due to answer order – randomise and rotate. 2014. http://​austinresearch.​co.​uk/​avoiding-response-bias-due-to-answer-order . Accessed 30 Nov 2015.
    50.Williams AE, Davies S, Graham A, Dagg A, Longrigg K, Lyons C, et al. Guidelines for the management of the foot health problems associated with rheumatoid arthritis. Musculoskeletal Care. 2011;9:86–92.CrossRef PubMed
    51.Firth J, Nelson A, Briggs M, Gorecki C. Experiences of healthcare provision for foot ulceration occurring in people with rheumatoid arthritis. Musculoskeletal Care. 2013;11:159–67.CrossRef PubMed
    52.Williams R. Mental health in RA: an overview. Lecture presented at; 2015; British Society of Rheumatology Annual Conference, Manchester Central, UK.
  • 作者单位:Savia de Souza (1) (2)
    Ruth Williams (1)
    Heidi Lempp (1)

    1. Department of Academic Rheumatology, Faculty of Life Sciences & Medicine, King’s College London, London, UK
    2. Rheumatology Department, King’s College Hospital NHS Foundation Trust, London, UK
  • 刊物主题:Orthopedics; Rehabilitation;
  • 出版者:BioMed Central
  • ISSN:1757-1146
文摘
Background Feet are often the first site of joint involvement in rheumatoid arthritis (RA) and get progressively worse if unmanaged, leading to permanent disability and negatively impacting patients’ quality of life. Podiatrists are specialists in the assessment, diagnosis and management of foot and ankle problems, however, RA outpatients often rely on referral from rheumatology clinicians to gain access to musculoskeletal podiatry services on the UK National Health Service (NHS). Therefore, the aim of this evaluation was to identify the foot health needs of rheumatoid arthritis patients and if they are being met by rheumatology clinicians.

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