Motivational techniques to improve self-care in hemophilia: the need to support autonomy in children

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• 作者：Sarah Bérubé ; Florine Mouillard ; Claudine Amesse ; Serge Sultan
• 关键词：Hemophilia ; Motivation ; Adherence ; Self ; care ; Intervention ; Psychosocial ; Self ; determination
• 刊名：BMC Pediatrics
• 出版年：2016
• 出版时间：December 2016
• 年：2016
• 卷：16
• 期：1
• 全文大小：428 KB
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• 作者单位：Sarah Bérubé (1)
  Florine Mouillard (1)
  Claudine Amesse (1)
  Serge Sultan (1)
  
  1. CHU Sainte-Justine, Université de Montreal, 3175 Chemin de la Côte-Sainte-Catherine, Montreal, QC, H3T 1C5, Canada
  
• 刊物主题：Pediatrics; Internal Medicine;
• 出版者：BioMed Central
• ISSN：1471-2431

文摘

Background In pediatric hemophilia, caregivers are facing unique challenges to adherence and self-care in children and adolescents with hemophilia. Hemophilia treatment requires adequate prophylaxis and on-demand treatment, as well as a clear behavioral strategy to limit risk-taking in terms of physical exercise and diet. Medication adherence rates of hemophilia patients have been reported to decrease during late childhood and adolescence. In the developing child, moving safely from parent-care to self-care is one of the greatest challenges of integrative care within this domain. There is a clear need for initiatives designed to increase an individual’s motivation for treatment and self-care activities.