Transparent Medical Data Systems

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• 作者：Dayana Spagnuelo ; Gabriele Lenzini
• 关键词：Transparency ; Taxonomy ; Requirements ; Medical data systems
• 刊名：Journal of Medical Systems
• 出版年：2017
• 出版时间：January 2017
• 年：2017
• 卷：41
• 期：1
• 全文大小：1,773 KB
• 刊物类别：Mathematics and Statistics
• 刊物主题：Statistics
  Statistics for Life Sciences, Medicine and Health Sciences
  Health Informatics and Administration
  
• 出版者：Springer Netherlands
• ISSN：1573-689X
• 卷排序：41

文摘

Transparency is described as the quality to be open about policies and practices. It is intended to inform end users of what happens to their data. It promotes good quality of service and is believed to sustain people’s demand for privacy. However, at least for medical data systems, a clear definition of the property is missing and there is no agreement on what requirements qualify it. We look into this problem. First we identify concepts that relate with transparency: openness, empowerment, auditability, availability, accountability, verifiability. We discuss them in Health Information Technology, so clarifying what transparency is. Then we elicit a list of requirements that indicate how transparency can be realised in modern medical data systems such as those managing electronic health records.