“It was like walking without knowing where I was going”: A Qualitative Study of Autism in a UK Somali Migrant Community

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• 作者：Fiona Fox ; Nura Aabe ; Katrina Turner…
• 关键词：Autism ; Somali ; Migrant ; Qualitative ; Attitudes ; Childhood ; Disability ; Help ; seeking
• 刊名：Journal of Autism and Developmental Disorders
• 出版年：2017
• 出版时间：February 2017
• 年：2017
• 卷：47
• 期：2
• 页码：305-315
• 全文大小：929KB
• 刊物类别：Behavioral Science
• 刊物主题：Child and School Psychology; Pediatrics; Neurosciences; Public Health;
• 出版者：Springer US
• ISSN：1573-3432
• 卷排序：47

文摘

Increasing recognition of autism in Somali migrant communities means that appropriate support services are needed. Attitudes to autism and barriers related to help-seeking in these communities are poorly understood. We aimed to assess what families affected by autism need, and how health, education and social care services can support them. In partnership with the local Somali community the research team conducted 15 in-depth interviews with parents affected by autism. Two themes are reported; ‘Perceptions of Autism’ and ‘Navigating the System’. Our research shows the importance of understanding cultural views of autism and the need to raise awareness, reduce stigma and provide support to encourage families not to delay seeking help for their children.