Caregiving Burden and Parent–Child Quality of Life Outcomes in Neurodevelopmental Conditions: The Mediating Role of Behavioral Disengagement

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• 作者：Carlos Carona (1) (2)
  Neuza Silva (1)
  Carla Crespo (1)
  Maria Cristina Canavarro (1)
  
• 关键词：Caregiving burden ; Quality of life ; Behavioral disengagement
• 刊名：Journal of Clinical Psychology in Medical Settings
• 出版年：2014
• 出版时间：December 2014
• 年：2014
• 卷：21
• 期：4
• 页码：320-328
• 全文大小：251 KB
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• 作者单位：Carlos Carona (1) (2)
  Neuza Silva (1)
  Carla Crespo (1)
  Maria Cristina Canavarro (1)
  
  1. Faculty of Psychology and Education Sciences, The University of Coimbra, Rua do Colégio Novo - Apartado 6153, 3001-802, Coimbra, Portugal
  2. Cognitive-Behavioral Center for Research and Intervention, The University of Coimbra, Coimbra, Portugal
  
• ISSN：1573-3572

文摘

The aim of this study was to analyze the direct and indirect effects, via parents-behavioral disengagement coping, of caregiving burden on the quality of life (QL) of parents and their children with neurodevelopmental conditions. Self-completion questionnaires on the target variables were administered to a sample of 156 parents who had a child with a neurodevelopmental condition, namely epilepsy (n?=?65) and cerebral palsy (n?=?91). Structural equation modeling was used to test a mediation model and ascertain direct and indirect effects among study variables. Significant direct effects of caregiving burden on parents-and their children’s QL were found. Additionally, caregiving burden had a significant indirect effect on parents-QL, via behavioral disengagement, but not on their children’s QL. Finally, this model was found to be invariant across conditions and patients-age groups. Caregiving burden may be elected as a strategic intervention target to improve parent–child QL outcomes in neuropediatric settings. Parents should be encouraged to avoid or reduce behavioral disengagement coping in relation to their caregiving stress, and alternatively adopt active coping strategies that may positively affect their children’s QL and impede or attenuate the deleterious effects of caregiving burden on their own QL.