Establishing clinical meaning and defining important differences for Patient-Reported Outcomes Measurement Information System (PROMIS^®) measures in juvenile idiopathic arthritis using standard setting with patients, parents, and providers

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• 作者：Esi M. Morgan ; Constance A. Mara ; Bin Huang ; Kimberly Barnett…
• 关键词：PROMIS ; Patient ; reported outcomes ; Item response theory (IRT) ; Psychometric methods ; Juvenile idiopathic arthritis
• 刊名：Quality of Life Research
• 出版年：2017
• 出版时间：March 2017
• 年：2017
• 卷：26
• 期：3
• 页码：565-586
• 全文大小：
• 刊物类别：Medicine
• 刊物主题：Quality of Life Research; Sociology, general; Public Health; Quality of Life Research;
• 出版者：Springer International Publishing
• ISSN：1573-2649
• 卷排序：26

文摘

BackgroundPatient-Reported Outcomes Measurement Information System (PROMIS) measures are used increasingly in clinical care. However, for juvenile idiopathic arthritis (JIA), scores lack a framework for interpretation of clinical severity, and minimally important differences (MID) have not been established, which are necessary to evaluate the importance of change.