Psychosocial profile of pediatric brain tumor survivors with neurocognitive complaints
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  • 作者:Marieke Anna de Ruiter…
  • 关键词:Brain tumor ; Pediatric oncology ; Psychosocial ; Late effects of cancer treatment ; Quality of life
  • 刊名:Quality of Life Research
  • 出版年:2016
  • 出版时间:February 2016
  • 年:2016
  • 卷:25
  • 期:2
  • 页码:435-446
  • 全文大小:643 KB
  • 参考文献:1.Howlader, N., Noone, A., Krapcho, M., et al. (2014). SEER Cancer Statistics Review, 1975–2011, National Cancer Institute [Internet]. http://​seer.​cancer.​gov/​csr/​1975_​2011/​
    2.Tonning Olsson, I., Perrin, S., Lundgren, J., et al. (2014). Long-term cognitive sequelae after pediatric brain tumor related to medical risk factors, age, and sex. Pediatric Neurology, 51, 515–521.CrossRef PubMed
    3.Glauser, T. A., & Packer, R. J. (1991). Cognitive deficits in long-term survivors of childhood brain tumors. Child’s Nervous System, 7, 7–12.CrossRef
    4.Stargatt, R., Rosenfeld, J. V., Anderson, V., et al. (2006). Intelligence and adaptive function in children diagnosed with brain tumour during infancy. Journal of Neuro-oncology, 80, 295–303.CrossRef PubMed
    5.Saury, J. M. G., & Emanuelson, I. (2011). Cognitive consequences of the treatment of medulloblastoma among children. Pediatric Neurology, 44, 21–30.CrossRef PubMed
    6.De Ruiter, M. A., van Mourik, R., Schouten-van Meeteren, A. Y. N., et al. (2013). Neurocognitive consequences of a paediatric brain tumour and its treatment: A meta-analysis. Developmental Medicine and Child Neurology, 55, 408–417.CrossRef PubMed
    7.Ellenberg, L., Liu, Q., Gioia, G. A., et al. (2009). Neurocognitive status in long-term survivors of childhood CNS malignancies: A report from the Childhood Cancer Survivor Study. Neuropsychology, 23, 705–717.PubMedCentral CrossRef PubMed
    8.Wakefield, C. E., McLoone, J., Goodenough, B., et al. (2010). The psychosocial impact of completing childhood cancer treatment: A systematic review of the literature. Journal of Pediatric Psychology, 35, 262–274.CrossRef PubMed
    9.Patenaude, A. F., & Kupst, M. J. (2005). Psychosocial functioning in pediatric cancer. Journal of Pediatric Psychology, 30, 9–27.CrossRef PubMed
    10. www.​kidscreen.​org [Internet], 2015. http://​www.​kidscreen.​org/​english/​measurement-model/​ . Cited 2015 Apr 14.
    11.Gudrunardottir, T., Lannering, B., Remke, M., et al. (2014). Treatment developments and the unfolding of the quality of life discussion in childhood medulloblastoma: A review. Child’s Nervous System, 30, 979–990.CrossRef PubMed
    12.Zebrack, B. J., Gurney, J. G., Oeffinger, K., et al. (2004). Psychological outcomes in long-term survivors of childhood brain cancer: A report from the childhood cancer survivor study. Journal of Clinical Oncology, 22, 999–1006.CrossRef PubMed
    13.Aukema, E. J., Schouten-van Meeteren, A. Y. N., Last, B. F., et al. (2013). Childhood brain tumor survivors at risk for impaired health-related quality of life. Journal of Pediatric Hematology/Oncology, 35, 603–609.CrossRef PubMed
    14.Penn, A., Shortman, R. I., Lowis, S. P., et al. (2010). Child-related determinants of health-related quality of life in children with brain tumours 1 year after diagnosis. Pediatric Blood & Cancer, 55, 1377–1385.CrossRef
    15.Harter, S. (1985). Self-perception profile for children. Denver, CO: University of Denver.
    16.Schulte, F., & Barrera, M. (2010). Social competence in childhood brain tumor survivors: A comprehensive review. Supportive Care in Cancer, 18, 1499–1513.CrossRef PubMed
    17.Hardy, K. K., Willard, V. W., Watral, M. A., et al. (2010). Perceived social competency in children with brain tumors: Comparison between children on and off therapy. Journal of Pediatric Oncology Nursing, 27, 156–163.CrossRef PubMed
    18.Chou, L.-N., & Hunter, A. (2009). Factors affecting quality of life in Taiwanese survivors of childhood cancer. Journal of Advanced Nursing, 65, 2131–2141.CrossRef PubMed
    19.Campos, M., Hassan, B., Riechelmann, R., et al. (2011). Cancer-related fatigue: A review. Revista Da Associacao Medica Brasileira, 57, 206–214.CrossRef
    20.Meeske, K., Katz, E. R., Palmer, S. N., et al. (2004). Parent proxy-reported health-related quality of life and fatigue in pediatric patients diagnosed with brain tumors and acute lymphoblastic leukemia. Cancer, 101, 2116–2125.CrossRef PubMed
    21.Verberne, L. M., Maurice-Stam, H., Grootenhuis, M. A., et al. (2012). Sleep disorders in children after treatment for a CNS tumour. Journal of Sleep Research, 21, 461–469.CrossRef PubMed
    22.Meeske, K. A., Patel, S. K., Palmer, S. N., et al. (2007). Factors associated with health-related quality of life in pediatric cancer survivors. Pediatric Blood & Cancer, 49, 298–305.CrossRef
    23.Daniel, L. C., Brumley, L. D., & Schwartz, L. A. (2013). Fatigue in adolescents with cancer compared to healthy adolescents. Pediatric Blood & Cancer, 60, 1902–1907.CrossRef
    24.Beauchamp, M. H., & Anderson, V. (2010). SOCIAL: An integrative framework for the development of social skills. Psychological Bulletin, 136, 39–64.CrossRef PubMed
    25.Aarsen, F. K., Paquier, P. F., Arts, W.-F. M., et al. (2009). Cognitive deficits and predictors 3 years after diagnosis of a pilocytic astrocytoma in childhood. Journal of Clinical Oncology, 27, 3526–3532.CrossRef PubMed
    26.Maddrey, A. M., Bergeron, J. A., Lombardo, E. R., et al. (2005). Neuropsychological performance and quality of life of 10 year survivors of childhood medulloblastoma. Journal of Neuro-oncology, 72, 245–253.CrossRef PubMed
    27.Wolfe, K. R., Madan-Swain, A., & Kana, R. K. (2012). Executive dysfunction in pediatric posterior fossa tumor survivors: A systematic literature review of neurocognitive deficits and interventions. Dev Neuropsychol, 37, 153–175.PubMedCentral CrossRef PubMed
    28.Bhat, S. R., Goodwin, T. L., Burwinkle, T. M., et al. (2005). Profile of daily life in children with brain tumors: An assessment of health-related quality of life. Journal of Clinical Oncology, 23, 5493–5500.CrossRef PubMed
    29.De Ruiter, M. A., Schouten-Van Meeteren, A. Y. N., Van Mourik, R., et al. (2012). Neurofeedback to improve neurocognitive functioning of children treated for a brain tumor: Design of a randomized controlled double-blind trial. BMC Cancer, 12, 581.PubMedCentral CrossRef PubMed
    30.Houtzager, B. A., Grootenhuis, M. A., Caron, H. N., et al. (2004). Quality of life and psychological adaptation in siblings of paediatric cancer patients, 2 years after diagnosis. Psychooncology, 13, 499–511.CrossRef PubMed
    31.Alderfer, M. A., Long, K. A., Lown, E. A., et al. (2010). Psychosocial adjustment of siblings of children with cancer: A systematic review. Psychooncology, 19, 789–805.CrossRef PubMed
    32.Eiser, C., & Varni, J. W. (2013). Health-related quality of life and symptom reporting: Similarities and differences between children and their parents. European Journal of Pediatrics, 172, 1299–1304.CrossRef PubMed
    33.Ravens-Sieberer, U., Auquier, P., Erhart, M., et al. (2007). The KIDSCREEN-27 quality of life measure for children and adolescents: Psychometric results from a cross-cultural survey in 13 European countries. Quality of Life Research, 16, 1347–1356.CrossRef PubMed
    34.Ravens-Sieberer, U., Erhart, M., Rajmil, L., et al. (2010). Reliability, construct and criterion validity of the KIDSCREEN-10 score: A short measure for children and adolescents’ well-being and health-related quality of life. Quality of Life Research, 19, 1487–1500.PubMedCentral CrossRef PubMed
    35.Harter, S. (1985). Social-perception profile for children. Denver, CO: University of Denver.
    36.Veerman, J. W., Straathof, M. A. E., Treffers, P. D. A., van den Bergh, B. R. H., & ten BL. (1997). Handleiding bij de Competentie Belevingsschaal voor Kinderen, CBSK (Manual of the Self Perception Profile for Children—Dutch version). Amsterdam, Lisse, Swets & Zeitlinger
    37.Treffers, P., Goedhart, A., Veerman, J., et al. (2002). Handleiding bij de Competentie Belevingsschaal voor Adolescenten, CBSA (Manual of the Self Perception Profile for Adolescents – Dutch version). Amsterdam, Lisse: Swets & Zeitlinger.
    38.Goodman, R. (1997). The Strengths and Difficulties Questionnaire: A research note. Journal of Child Psychology and Psychiatry, 38, 581–586.CrossRef PubMed
    39.Van Widenfelt, B. M., Goedhart, A. W., Treffers, P. D. A., et al. (2003). Dutch version of the Strengths and Difficulties Questionnaire (SDQ). European Child and Adolescent Psychiatry, 12, 281–289.CrossRef PubMed
    40.Stulemeijer, M., de Jong, L. W. A. M., Fiselier, T. J. W., et al. (2005). Cognitive behaviour therapy for adolescents with chronic fatigue syndrome: Randomised controlled trial. BMJ, 330, 14.PubMedCentral CrossRef PubMed
    41.Gioia, G. A., Isquith, P. K., Guy, S. C., et al. (2000). TEST REVIEW behavior rating inventory of executive function behavior rating inventory of executive function. Child Neuropsychology, 6, 235–238.CrossRef PubMed
    42.Smidts, D. P., & Huizinga, M. (2009). BRIEF executieve functies gedragsvragenlijst: Handleiding. Amsterdam: Hogrefe Uitgevers.
    43.Cohen, J. (1962). The statistical power of abnormal-social psychological research: A review. Journal of Abnormal and Social Psychology, 65, 145–153.CrossRef PubMed
    44.Boman, K. K., Hörnquist, L., De Graaff, L., et al. (2013). Disability, body image and sports/physical activity in adult survivors of childhood CNS tumors: Population-based outcomes from a cohort study. Journal of Neuro-oncology, 112, 99–106.CrossRef PubMed
    45.Blix, I., & Birkeland, M. S. (2015). posttraumatic growth and centrality of event: A longitudinal study in the aftermath of the 2011 Oslo Bombing. Psychological Trauma: Theory, Research, Practice, and Policy, 7, 18–23.CrossRef
    46.Zebrack, B. J., Stuber, M. L., Meeske, K. A., et al. (2012). Perceived positive impact of cancer among long-term survivors of childhood cancer: a report from the childhood cancer survivor study. Psychooncology, 21, 630–639.PubMedCentral CrossRef PubMed
    47.Sattoe, J. N. T., van Staa, A., & Moll, H. A. (2012). The proxy problem anatomized: Child–parent disagreement in health related quality of life reports of chronically ill adolescents. Health Qual Life Outcomes, 10, 10.PubMedCentral CrossRef PubMed
    48.Theunissen, N. C., Vogels, T. G., Koopman, H. M., et al. (1998). The proxy problem: Child report versus parent report in health-related quality of life research. Quality of Life Research, 7, 387–397.CrossRef PubMed
    49.Chang, P.-C., & Yeh, C.-H. (2005). Agreement between child self-report and parent proxy-report to evaluate quality of life in children with cancer. Psychooncology, 14, 125–134.CrossRef PubMed
    50.Sato, I., Higuchi, A., Yanagisawa, T., et al. (2013). Factors influencing self- and parent-reporting health-related quality of life in children with brain tumors. Quality of Life Research, 22, 185–201.CrossRef PubMed
    51.O’Leary, T. E., Diller, L., & Recklitis, C. J. (2007). The effects of response bias on self-reported quality of life among childhood cancer survivors. Quality of Life Research, 16, 1211–1220.CrossRef PubMed
    52.Liptak, C., Manley, P., & Recklitis, C. J. (2012). The feasibility of psychosocial screening for adolescent and young adult brain tumor survivors: The value of self-report. Journal of Cancer Survivorship, 6, 379–387.CrossRef PubMed
    53.Turner, C. D., Rey-Casserly, C., Liptak, C. C., et al. (2009). Late effects of therapy for pediatric brain tumor survivors. Journal of Clinical Oncology, 24, 1455–1463.
    54.Van Cleave, J., & Davis, M. M. (2006). Bullying and peer victimization among children with special health care needs. Pediatrics, 118, e1212–e1219.CrossRef PubMed
    55.Engelen, V., Detmar, S., Koopman, H., et al. (2012). Reporting health-related quality of life scores to physicians during routine follow-up visits of pediatric oncology patients: Is it effective? Pediatric Blood & Cancer, 58, 766–774.CrossRef
  • 作者单位:Marieke Anna de Ruiter (1)
    Antoinette Yvonne Narda Schouten-van Meeteren (2)
    Dannis Gilbert van Vuurden (3)
    Heleen Maurice-Stam (1)
    Corrie Gidding (4)
    Laura Rachel Beek (5)
    Bernd Granzen (6)
    Jaap Oosterlaan (7)
    Martha Alexandra Grootenhuis (1)

    1. Pediatric Psychosocial Department, Emma Children’s Hospital AMC, Meibergdreef 9, Room A3-241, 1105 AZ, Amsterdam, The Netherlands
    2. Department of Pediatric Oncology, Emma Children’s Hospital AMC, Amsterdam, The Netherlands
    3. Department of Pediatrics, VU Medical Center, Amsterdam, The Netherlands
    4. Department of Pediatric Oncology/Hematology, Radboud University Medical Center, Nijmegen, The Netherlands
    5. Department of Medical Psychology, Wilhelmina Children’s Hospital UMC, Utrecht, The Netherlands
    6. Department of Pediatrics, Maastricht University Medical Center, Maastricht, The Netherlands
    7. Department of Clinical Neuropsychology, VU University Amsterdam, Amsterdam, The Netherlands
  • 刊物类别:Medicine
  • 刊物主题:Medicine & Public Health
    Quality of Life Research
    Sociology
    Public Health
  • 出版者:Springer Netherlands
  • ISSN:1573-2649
文摘
Purpose With more children surviving a brain tumor, neurocognitive consequences of the tumor and its treatment become apparent, which could affect psychosocial functioning. The present study therefore aimed to assess psychosocial functioning of pediatric brain tumor survivors (PBTS) in detail.

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