Die International Rare Cancers Initiative
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- 作者：Prof. Dr. Peter Hohenberger ; Prof. Dr. Bernd Kasper
- 关键词：SchlüsselwörterNeoplasien ; Europäische Union ; Gesundheitsnetzwerke ; Patientenversorgung ; Onkologie
- 刊名：Forum
- 出版年：2017
- 出版时间：February 2017
- 年：2017
- 卷：32
- 期：1
- 页码：26-31
- 全文大小：
- 刊物主题：Oncology; Surgical Oncology; Internal Medicine; Hematology; Gynecology;
- 出版者：Springer Medizin
- ISSN：2190-9784
- 卷排序：32
文摘
The European Union has followed its principle of “Treatment Across Borders” in order to improve the international healthcare treatment of cancer patients. The RARECARE working group (2007–2011) and the follow-up project RARECARENet form the basis. The establishment of the European Reference Networks (ERN) in December 2016 and the Joint Action on Rare Cancer (JARC) in November 2016 are also part of the project. A total of 23 networks were accepted for the ERN including 3 for malignant diseases, EURACAN, EuroBloodNet and PaedCan-ERN. A total of approximately 70 European centers are active in this project, which cover the 12 families of rare tumors. The requirement profiles of the centers participating in the ERN were validated by the scientific community and an external independent organization. The task of the JARC initiative is to evaluate and if necessary adapt currently existing guidelines and to make them available. The aim is to gather evidence from epidemiological and clinical cancer registers that the prognosis of patients is improved by the initiated programs.