The meaning of living close to a person with Alzheimer disease

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• 作者：Mette Bergman ; Caroline Graff ; Maria Eriksdotter…
• 刊名：Medicine, Health Care and Philosophy
• 出版年：2016
• 出版时间：September 2016
• 年：2016
• 卷：19
• 期：3
• 页码：341-349
• 全文大小：430 KB
• 刊物类别：Medicine
• 刊物主题：Medicine & Public Health
  Theory of Medicine and Bioethics
  Medical Law
  Ethics
  History of Medicine
  
• 出版者：Springer Netherlands
• ISSN：1572-8633
• 卷排序：19

文摘

Only a few studies explore the lifeworld of the spouses of persons affected by early-onset Alzheimer disease (AD). The aim of this study is to explore the lifeworld of spouses when their partners are diagnosed with AD, focusing on spouses’ lived experience. The study employs an interpretative phenomenological framework. Ten in-depth interviews are performed. The results show that spouses’ lifeworld changes with the diagnosis. They experience an imprisoned existence in which added obligations, fear, and worry keep them trapped at home, both physically and mentally. In their longing for freedom, new strategies and attitudes helps the spouses to create an extended “lived space” with their partner. The findings stress the importance of paying attention to the lifeworld of spouses and making clinical recommendations on this basis. Most importantly, the lifeworld perspective has implications for how we understand what care is. We hope to challenge all different healthcare professionals and invite them to discuss the deep meaning of care and the definition of being professional in encounters with vulnerable others from a lifeworld perspective.KeywordsAlzheimer diseaseEarly-onsetInterpretative phenomenologyLifeworldSpousesProfessional approach