Important factors to consider when treating children with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): perspectives of health professionals from specialist services.
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- 作者：Roxanne M. Parslow ; Alison Shaw ; Kirstie L. Haywood ; Esther Crawley
- 关键词：Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) ; Children ; Health Professionals ; Qualitative
- 刊名：BMC Pediatrics
- 出版年：2017
- 出版时间：December 2017
- 年：2017
- 卷：17
- 期：1
- 全文大小：418KB
- 刊物主题：Pediatrics; Internal Medicine;
- 出版者：BioMed Central
- ISSN：1471-2431
- 卷排序：17
文摘
BackgroundPaediatric Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME) is relatively common and disabling. Improving treatment requires the development of Patient Reported Outcome Measures (PROMs) that enable clinicians and researchers to collect patient-centred evidence on outcomes. Health professionals are well placed to provide clinical insight into the condition, its treatment and possible outcomes. This study aimed to understand the perspectives of specialist paediatric CFS/ME health professionals and identify outcomes that are clinically important.