A comparison of children and adolescent’s self-report and parental report of the PedsQL among those with and without autism spectrum disorder

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• 作者：M. A. Stokes ; L. Kornienko ; A. M. Scheeren ; H. M. Koot…
• 关键词：Autism ; ASD ; PedsQL ; Item response analysis ; Child ; Children ; Parent ; Proxy reporting ; Differential item function
• 刊名：Quality of Life Research
• 出版年：2017
• 出版时间：March 2017
• 年：2017
• 卷：26
• 期：3
• 页码：611-624
• 全文大小：
• 刊物类别：Medicine
• 刊物主题：Quality of Life Research; Sociology, general; Public Health; Quality of Life Research;
• 出版者：Springer International Publishing
• ISSN：1573-2649
• 卷排序：26

文摘

PurposeChildren and adolescents with autism spectrum disorders (ASD) are understood to experience a reduced quality of life compared to typically developing (TD) peers. The evidence to support this has largely been derived from proxy reports, in turn which have been evaluated by Cronbach’s alpha and interrater reliability, neither of which demonstrate unidimensionality of scales, or that raters use the instruments consistently. To redress this, we undertook an evaluation of the Pediatric Quality of Life Inventory™ (PedsQL), a widely used measure of children’s quality of life. Three questions were explored: (1). do TD children or adolescents and their parents use the PedsQL differently; (2). do children or adolescents with ASD and their parents use the PedsQL differently, and (3). do children or adolescents with ASD and TD children or adolescents use the PedsQL differently? By using the scales differently, we mean whether respondents endorse items differently contingent by group.