Where is the patient in models of patient-centred care: a grounded theory study of total joint replacement patients

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• 作者：Fiona Webster (1)
  Anthony V Perruccio (2)
  Richard Jenkinson (3)
  Susan Jaglal (4)
  Emil Schemitsch (5)
  James P Waddell (6)
  Samantha Bremner (7)
  Melanie Hammond Mobilio (1)
  Viji Venkataramanan (8)
  Aileen M Davis (9)
  
• 关键词：Osteoarthritis ; Hip and knee replacement ; Models of care ; Qualitative methods ; Patient experiences of care ; Patient ; centered care
• 刊名：BMC Health Services Research
• 出版年：2013
• 出版时间：December 2013
• 年：2013
• 卷：13
• 期：1
• 全文大小：203 KB
• 参考文献：1. National Health Services: 2010-015: from good to great: preventative, people-centred, productive. http://wwwofficial-documentsgovuk/document/cm77/7775/7775pdf accessed 5June2013
  2. Health Council of Canada Report: New report from CIHI: wait times in Canada–a summary. 2012. http://www.healthcouncilcanada.ca/cnt_nws.php?id=32 retrieved on 2013-04-30.
  3. Daker-White G, Carr AJ, Harvey I, Woolhead G, Bannister G, Nelson I, Kammerling M: A randomised controlled trial: shifting boundaries of doctors and physiotherapists in orthopaedic outpatient departments. / J Epidemiol Community Health 1999,53(10):643-50. CrossRef
  4. Rymaszewski LA, Sharma S, McGill PE, Murdoch A, Freeman S, Loh T: A team approach to musculo-skeletal disorders. / Ann R Coll Surg Engl 2005,87(3):174-80. CrossRef
  5. Stevenson K: A new dawn: a consultant physiotherapist in musculoskeletal disease. / Musculoskeletal Care 2003,1(1):65-0. CrossRef
  6. Weale AE, Bannister GC: Who should see orthopaedic outpatients–physiotherapists or surgeons? / Ann R Coll Surg Engl 1995,77(2 Suppl):71-3.
  7. Aiken AB, Atkinson M, Harrison MM, Hope J: Reducing hip and knee replacement wait times: an expanded role for physiotherapists in orthopedic surgical clinics. / Healthcare Quarterly (Toronto, Ont) 2007,10(2):88-1. 86 CrossRef
  8. Robarts SKD, MacLeod AM, Findlay H, Gollish J: A framework for the development and implementation of an advanced practice role for physiotherapists that improves access and quality of care for patients. / Healthc Q 2008,11(2):67-5. CrossRef
  9. Gooch KL, Smith D, Wasylak T, Faris PD, Marshall DA, Khong H, Hibbert JE, Parker RD, Zernicke RF, Beaupre L, Pearce T, Johnston DW, Frank CB: The Alberta hip and knee replacement project: a model for health technology assessment based on comparative effectiveness of clinical pathways. / Int J Technol Assess Health Care 2009,25(2):113-23. CrossRef
  10. Institute of Medicine: / Crossing the Quality Chasm: A New Health System for the 21st Century: Committee on Quality of Health Care in America. Washington, D.C: National Academy Press; 2001.
  11. Slater L: Person-centredness: a concept analysis. / Contemp Nurse 2006,23(1):135-44. CrossRef
  12. Mead N, Bower P: Patient-centred consultations and outcomes in primary care: a review of the literature. / Patient Educ Couns 2002,48(1):51-1. CrossRef
  13. Stewart M, Brown JB, Donner A, McWhinney IR, Oates J, Weston WW, Jordan J: The impact of patient-centered care on outcomes. / J Fam Pract 2000,49(9):796-04.
  14. Armstrong D: The invention of patient-centred medicine. / Social Theory & Health 2011,9(4):410-18. CrossRef
  15. Ward CD: Is patient-centred care a good thing? / Clin Rehabil 2012,26(1):3-. CrossRef
  16. Glazier RH, Dalby DM, Badley EM, Hawker GA, Bell MJ, Buchbinder R, Lineker SC: Management of common musculoskeletal problems: a survey of Ontario primary care physicians. / CMAJ 1998,158(8):1037-040.
  17. Gossec L, Paternotte S, Maillefert JF, Combescure C, Conaghan PG, Davis AM, Gunther KP, Hawker G, Hochberg M, Katz JN, Kloppenburg M, Lim K, Lohmander LS, Mahomed NN, March L, Pavelka K, Punzi L, Roos EM, Sanchez-Riera L, Singh JA, Suarez-Almazor ME, Dougados M: The role of pain and functional impairment in the decision to recommend total joint replacement in hip and knee osteoarthritis: an international cross-sectional study of 1909 patients: report of the OARSI-OMERACT task force on total joint replacement. / Osteoarthritis Cartilage 2011,19(2):147-54. CrossRef
  18. Adam JA, Khaw FM, Thomson RG, Gregg PJ, Llewellyn-Thomas HA: Patient decision aids in joint replacement surgery: a literature review and an opinion survey of consultant orthopaedic surgeons. / Ann R Coll Surg Engl 2008,90(3):198-07. CrossRef
  19. Slover J, Shue J, Koenig K: Shared decision-making in orthopaedic surgery. / Clin Orthop Relat Res 2012,470(4):1046-053. CrossRef
  20. Kidd MO, Bond CH, Bell ML: Patients-perspectives of patient-centredness as important in musculoskeletal physiotherapy interactions: a qualitative study. / Physiotherapy 2011,97(2):154-62. CrossRef
  21. Petroz U, Kennedy D, Webster F, Nowak A: Patients-perceptions of individualized care: evaluating psychometric properties and results of the individualized care scale. / Can J Nurs Res 2011,43(2):80-00.
  22. Wylde V, Jeffery A, Dieppe P, Gooberman-Hill R: The assessment of persistent pain after joint replacement. / Osteoarthritis Cartilage 2012,20(2):102-05. CrossRef
  23. Sitzia J: How valid and reliable are patient satisfaction data? An analysis of 195 studies. / Int J Qual Health Care 1999,11(4):319-28. CrossRef
  24. Trout A, Magnusson AR, Hedges JR: Patient satisfaction investigations and the emergency department: what does the literature say? / Acad Emerg Med 2000,7(6):695-09. CrossRef
  25. Fitzpatrick R, Hopkins A: Problems in the conceptual framework of patient satisfaction research: an empirical exploration. / Sociol Health Illn 1983,5(3):297-11. CrossRef
  26. Rankin JM: ‘Patient satisfaction- knowledge for ruling hospital reform–an institutional ethnography. / Nurs Inq 2003,10(1):57-5. CrossRef
  27. Owens DJ, Batchelor C: Patient satisfaction and the elderly. / Soc Sci Med 1996,42(11):1483-491. CrossRef
  28. Sanders C, Donovan JL, Dieppe PA: Unmet need for joint replacement: a qualitative investigation of barriers to treatment among individuals with severe pain and disability of the hip and knee. / Rheumatology (Oxford) 2004,43(3):353-57. CrossRef
  29. McHugh GA, Luker KA, Campbell M, Kay PR, Silman AJ: A longitudinal study exploring pain control, treatment and service provision for individuals with end-stage lower limb osteoarthritis. / Rheumatology (Oxford) 2007,46(4):631-37. CrossRef
  30. Bremner S, Webster F, Katz J, Watt-Watson J, McCartney C: Older adults-postoperative pain medication usage after total knee arthroplasty: a qualitative descriptive study. / J Opioid Mgmt 2012,8(3):145-52. CrossRef
  31. Sale JE, Gignac M, Hawker G: How “bad-does the pain have to be? A qualitative study examining adherence to pain medication in older adults with osteoarthritis. / Arthritis Care Res 2006,55(2):272-78. CrossRef
  32. Lane-Carlson M-L, Kumar J: Engaging patients in managing their health care: patient perceptions of the effect of a total joint replacement presurgical class. / Per J Summer 2012,16(3):42-7.
  33. Sansom A, Donovan J, Sanders C, Dieppe P, Horwood J, Learmonth I, Williams S, Gooberman-Hill R: Routes to total joint replacement surgery: patients-and clinicians-perceptions of need. / Arthritis Care Res (Hoboken) 2010,62(9):1252-257. CrossRef
  34. Ballantyne PJ, Gignac MA, Hawker GA: A patient-centered perspective on surgery avoidance for hip or knee arthritis: lessons for the future. / Arthritis Rheum 2007,57(1):27-4. CrossRef
  35. O’Neill T, Jinks C, Ong BN: Decision-making regarding total knee replacement surgery: a qualitative meta-synthesis. / BMC Health Serv Res 2007, 7:52. CrossRef
  36. Crinson I: Putting patients first: the continuity of the consumerist discourse in health policy, from the radical right to New Labour. / Critical Social Policy 1998, 18:227. CrossRef
  37. Charmaz K: Constructionism and the grounded theory method. In / Handbook of Constructionist Research. Edited by: Gubrium IJAHJF. New York: The Guilford Press; 2008:397-12.
  38. Patton MQ: / Qualitative Evaluation and Research Method. 3rd edition. Newbury, CA: Sage; 1990.
  39. Coyne IT: Sampling in qualitative research: purposeful and theoretical sampling; merging or clear boundaries? / J Adv Nurs 1997,26(3):623-30. CrossRef
  40. Maxwell J: What will you actually do? In / Qualitative Research Design: An Interactive Approach. 2nd edition. Thousand Oaks, CA: Sage; 2006:79-03.
  41. Draucker CB, Martsolf DS, Ross R, Rusk TB: Theoretical sampling and category development in grounded theory. / Qual Health Res 2007,17(8):1137-148. CrossRef
  42. Holt A: Using the telephone for narrative interviewing: a research note. / Qual Res 2010,10(1):113-21. CrossRef
  43. NVivo Qualitative Data Analysis Software: / QSR International Pty Ltd. Version 9. 2010.
  44. Stern PH: Using grounded theory method in nursing research. In / Qualitative Research Methods in Nursing. Edited by: Leininger MM. New York: Grune & Stratton; 1985:149-60.
  45. Sandelowski M: Theory unmasked: the uses and guises of theory in qualitative research. / Res Nurs Health 1993,16(3):213-18. CrossRef
  46. Clark JP: How to peer review a qualitative manuscript. In / Peer Review in Health Sciences. 2nd edition. Edited by: Godlee F, Jefferson T. London: BMJ Books; 2003:219-35.
  47. Power JD, Badley EM, French MR, Wall AJ, Hawker GA: Fatigue in osteoarthritis: a qualitative study. / BMC Musculoskelet Disord 2008, 9:63. CrossRef
  48. Wolfert MZ, Gilson AM, Dahl JL, Cleary JF: Opioid analgesics for pain control: Wisconsin physicians-knowledge, beliefs, attitudes, and prescribing practices. / Pain Med 2010,11(3):425-34. CrossRef
  49. Hernandez SH, Nelson LS: Prescription drug abuse: insight into the epidemic. / Clin Pharmacol Ther 2010,88(3):307-17. CrossRef
  50. Portenoy RK: Opioid therapy for chronic non-malignant pain: a review of the critical issues. / J Pain Symptom Mgmt 1996, 11:203-17. CrossRef
  51. Eksterowicz AJ, Eksterowicz NB: The socio-cultural, economic and political impediments to pain care in the twenty-first century. / Soc Sci J 2004,41(2):179-96. CrossRef
  52. Rotstein DL, Alter DA: Where does the waiting list begin? A short review of the dynamics and organization of modern waiting lists. / Soc Sci Med 2006,62(12):3157-160. CrossRef
  53. Legare F, Ratte S, Gravel K, Graham ID: Barriers and facilitators to implementing shared decision-making in clinical practice: update of a systematic review of health professionals-perceptions. / Patient Educ Couns 2008,73(3):526-35. CrossRef
  54. Cheraghi-Sohi S, Bower P, Kennedy A, Morden A, Rogers A, Richardson J, Sanders T, Stevenson F, Ong BN: Patient priorities in osteoarthritis and comorbid conditions: a secondary analysis of qualitative data. / Arthritis Care Res (Hoboken) 2013,65(6):920-27. CrossRef
  55. The pre-publication history for this paper can be accessed here:http://www.biomedcentral.com/1472-6963/13/531/prepub
  
• 作者单位：Fiona Webster (1)
  Anthony V Perruccio (2)
  Richard Jenkinson (3)
  Susan Jaglal (4)
  Emil Schemitsch (5)
  James P Waddell (6)
  Samantha Bremner (7)
  Melanie Hammond Mobilio (1)
  Viji Venkataramanan (8)
  Aileen M Davis (9)
  
  1. Department of Family and Community Medicine, University of Toronto, 500 University Avenue, 5th Floor, Toronto, Ontario, M5G 1V7, Canada
  2. Arthritis Program, Division of Orthopaedic Surgery, University Health Network and Institute of Health Policy, Management & Evaluation, 399 Bathurst Street, EW1-449, Toronto, Ontario, M5T 2S8, Canada
  3. Division of Orthopaedic Surgery, Sunnybrook Health Sciences Centre, 2075 Bayview Avenue, MG 361, Toronto, Ontario, M4N 3M5, Canada
  4. Department of Physical Therapy, University of Toronto, 160-500 University Avenue, Toronto, Ontario, M5G 1V7, Canada
  5. Division of Orthopaedic Surgery, St. Michael’s Hospital, 55 Queen Street East, Suite 800, Toronto, Ontario, M5C 1R6, Canada
  6. Division of Orthopaedic Surgery, St. Michael’s Hospital, 38 Shuter Street, 3rd floor, Room 3005, Toronto, Ontario, M5B 1A6, Canada
  7. Faculty of Medicine, McMaster University, 1280 Main Street West, Hamilton, Ontario, L8S 4L8, Canada
  8. Division of Health Care and Outcomes Research, Toronto Western Research Institute, University Health Network, 399 Bathurst Street, MP11-324, Toronto, Ontario, M5T 2S8, Canada
  9. Division of Health Care and Outcomes Research, Toronto Western Research Institute, University Health Network, 399 Bathurst Street, MP11-322, Toronto, Ontario, M5T 2S8, Canada
  
• ISSN：1472-6963

文摘

Background Patient-centered care ideally considers patient preferences, values and needs. However, it is unclear if policies such as wait time strategies for hip and knee replacement surgery (TJR) are patient-centred as they focus on an isolated episode of care. This paper describes the accounts of people scheduled to undergo TJR, focusing on their experience of (OA) as a chronic disease that has considerable impact on their everyday lives. Methods Semi-structured qualitative interviews were conducted with participants scheduled to undergo TJR who were recruited from the practices of two orthopaedic surgeons. We first used maximum variation and then theoretical sampling based on age, sex and joint replaced. 33 participants (age 38-79 years; 17 female) were included in the analysis. 20 were scheduled for hip replacement and 13 for knee replacement. A constructivist approach to grounded theory guided sampling, data collection and analysis. Results While a specific hip or knee was the target for surgery, individuals experienced multiple-joint symptoms and comorbidities. Management of their health and daily lives was impacted by these combined experiences. Over time, they struggled to manage symptoms with varying degrees of access to and acceptance of pain medication, which was a source of constant concern. This was a multi-faceted issue with physicians reluctant to prescribe and many patients reluctant to take prescription pain medications due to their side effects. Conclusions For patients, TJR surgery is an acute intervention in the experience of chronic disease, OA and other comorbidities. While policy has focused on wait time as patient/surgeon decision for surgery to surgery date, the patient’s experience does not begin or end with surgery as they struggle to manage their pain. Our findings suggest that further work is needed to align the medical treatment of OA with the current policy emphasis on patient-centeredness. Patient-centred care may require a paradigm shift that is not always evident in current policy and strategies.