Inter-observer agreement of a comprehensive health status classification system for pre-school children among patients with Wilmsrsquo"" a

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• 作者：P.C. Nathan ; W. Furlong ; J. Horsman ; C. Van schaik ; M. Rolland ; S. Weitzman ; D. Feeny and R.D. Barr
• 关键词：Health status classification ; Inter ; observer agreement ; Neuroblastoma ; Pre ; school children ; Wilms tumor
• 刊名：Quality of Life Research
• 出版年：2004
• 出版时间：December 2004
• 年：2004
• 卷：13
• 期：10
• 页码：1707-1714
• 全文大小：104 KB

文摘

We assessed inter-observer agreement on a new comprehensive health status classification system for pre-school children (CHSCS-PS). Prospective assessments of children aged 2–4.9years at the time of diagnosis of neuroblastoma (stages 3–4, excluding 4S) or Wilms tumor (stages II–V) were collected independently from a parent and nurse by self-report during therapy. Responses were used to determine functional status on 10 health domains, as well as an overall disability score. Inter-observer agreement was evaluated by a kappa statistic for agreement about levels within individual domains, and by an intraclass correlation coefficient (ICC) for agreement of overall disability scores. Twenty-four parent/nurse pairs of assessments were collected. Agreement was almost perfect for mobility and self-care, substantial for emotion and pain, and slight for speech. There was high percent agreement for vision, hearing, dexterity, learning and remembering, and thinking and problem solving, but insufficient variability in responses to calculate a kappa statistic. The ICC for overall disability scores between observers was 0.86, indicating strong agreement. Given the need for, and paucity of, instruments for the measurement of health-related quality of life in very young children, these results strongly support further evaluation of the CHSCS-PS.