The Catalonian Expert Patient Programme for Chagas Disease: An Approach to Comprehensive Care Involving Affected Individuals

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• 作者：Isabel Claveria Guiu ; Johanna Caro Mendivelso…
• 关键词：Expert patient ; Chagas disease ; Comprehensive care ; Chronic disease
• 刊名：Journal of Immigrant and Minority Health
• 出版年：2017
• 出版时间：February 2017
• 年：2017
• 卷：19
• 期：1
• 页码：80-90
• 全文大小：
• 刊物主题：Public Health; Sociology, general; Private International Law, International & Foreign Law, Comparative Law;
• 出版者：Springer US
• ISSN：1557-1920
• 卷排序：19

文摘

The Catalonian Expert Patient Programme on Chagas disease is a initiative, which is part of the Chronic Disease Programme. It aims to boost responsibility of patients for their own health and to promote self-care. The programme is based on nine sessions conducted by an expert patient. Evaluation was focusing in: habits and lifestyle/self-care, knowledge of disease, perception of health, self-esteem, participant satisfaction, and compliance with medical follow-up visits. Eighteen participants initiated the programme and 15 completed it. The participants were Bolivians. The 66.7 % of them had been diagnosed with chagas disease in Spain. The 100 % mentioned that they would participate in this activity again and would recommend it to family and friends. The knowledge about disease improve after sessions. The method used in the programme could serve as a key strategy in the field of comprehensive care for individuals with this disease.